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I'm new on this forum, so I thought I'd introduce myself.
-My name is Emily.
-I live in Georgia.
-I'm currently 16, 17 in two months.
-I was diagnosed with epilepsy in November of 2008.


My first experience was at school. It was about 6 or 7 in the evening. I play the trumpet in the school marching band, and we were all in the school parking lot preparing for our performance in a marching festival that we would be marching in in 20 minutes or so. We were all circled around our band director, who was warming everybody up. Suddenly, I got that weird "panic/deja vu" feeling that I'd had in the past. This time, it wouldn't go away. I began to feel dizzy, and my heart began pounding. I felt like I couldn't breathe. Suddenly, my neck/muscles seemed to tense and squeeze together, and I couldn't control them. I recall sort of twirling to the side, and then I went completely unconscious.
The rest kind of faded in. I didn't immediately become conscious again, but the first things I remembered were about 40 minutes afterward. I was on my back, in an ambulance. It hadn't begun moving yet, but I had no earthly idea what was going on. I was disoriented and confused, and crying. A woman took a needle and tried to stick it in my arm, but I began to scream like a two year-old, and tried pulling away. My mom and another man had me pinned down while the woman held my arm, and I felt really scared. I understood what they were saying, but for some reason, I couldn't form words or sentences. It was all just mumbled. We finally left, and the ambulance was driving at lightning speeds, which scared me even more. Although I was still crying and shouting, I began to come to my senses and I kept asking what was going on. The man in the back told me that I'd had a seizure, which completely shocked me, because I'd never had anything like that in the past.
When we arrived at the hospital, I had to be carried in, since I couldn't walk or stand upright without falling down. I had to be changed out of my band uniform, since I lost control of my bladder after I had my seizure. We stayed there for several hours, until I finally got to go home at 11 or 12. I remember my family stopped by to pick up barbeque or something, but my head hurt so bad that I couldn't eat anything. I skipped school the next day, since I felt really drained and dizzy, so I just slept.
The day after I went back to school, everybody seemed scared, and asked me what happened and if I was okay. They all said that I spun around in circles, then fell onto the ground and began shaking violently. My trumpet was also damaged, and my lips were swollen since they were the first to hit the ground (I had braces, too. :P ). I'd also bitten my tongue REALLY hard, and it hurt for at least two weeks.

Anyways, I've had some more since then (4 at home, 1 in history class, 1 at a minor-league baseball game). They're kinda embarrassing, but they don't really bother me that much anymore. I can even make jokes about them with my friends now. The only thing that REALLY sucks about it, is that I can't drive. :mad: I'd gotten my learner's permit a month or two before I had my first seizure, so I had to wait 6 months. The seizures kept coming though, until I had one in June, and then I didn't have any more. I waited and waited until it was December 19, just ONE FREAKING DAY before my six months were over, and guess what? I had a seizure in my bedroom (my brother noticed sounds from my bedroom and checked to see what was going on. I don't know WHAT happened, but there was blood all over my walls, and my mouth was bleeding, so apparently I was flinging myself onto my walls. I really dunno.). So now I have to wait another six months before I can drive. Argh!

Anyway, I know that was a little long, but that's just some background info.

Aaaannnddd I take 250mg of Lamictal every day. I can honestly say that Lamictal is the nastiest pill in existence.

By the way, it's almost 1am here, so please excuse my horrendous grammar. :P
 
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Hi Emily - Welcome to CWE
My daughter had her first seizure at the age of 14 and she is 18 now. Lamictal was one of the medications that she tried. All of the meds only made her seizures worse. So we have been making nutritional changes and she is improving. It hasn't been a quick fix, but I do see improvement when I look at the calendar journal that I keep.

I am sorry that you can't drive. Neither can Rebecca. We are making the best of the situation, and there are many places that a young person can live that you don't need a car. You seem to have a good attitude about your situation. It isn't easy when you have them occur while in school.

I would suggest that you consider how your diet is effecting your overall health. You were fine for 15 yrs of your life. Something has lowered your seizure threshold. (we all have a seizure threshold) It is lowered by a number of reasons. Diet, sleep, dehydration, stress, etc.
 
Welcome Emily

Good to have another musician here (Check out Spebers Auditorium).

I do know what it's like not to drive. I've never had a license since I was born with seizures but I'm sort of glad I didn't develop epilepsy after I was used to driving. It's much harder to give up your licens than it is to never have had one.
I can only imagine how frustrating it is to have had a seizure the day before your 6 months was up but I also think you're lucky it didn't happen after getting your license while you were driving. Even I'm scared that should I ever go the length of time I need to get my license (unlikely as it might be) I"d still be scared of having a seizure in the drivers seat.

I think you're so lucky that your classmates are so supportive. I remember high school (no matter how much I try to forget it lol) & people either made fun of me after seeing a seizure or just avoided me.

There are a few people about your age, you might want to check out the loft. Meanwhile, make yourself at comfy & check the site out. Someone should be by with coffee or coco soon.
 
Hey Emily, welcome to CWE!

The initial phase of having a seizure and getting diagnosed with epilepsy can be pretty disorienting and hard, so good for you for getting through it with a good attitude. There are more proactive steps you can take to deal with the epilepsy. If you're still having seizures on the Lamictal, you might want to ask your doctor about changing your dose or trying a different med.

And as Robin mentions above, it's good to look at other factors that might have contributed to your seizures. If you keep a seizure diary you might be able to find a trigger. It could be hormones, or diet sodas, or stress, or low blood sugar -- it's different for everyone, but if you can isolate a trigger then you can try and avoid or eliminate it.

Best,
Nakamova
 
:cheers:

Welcome Emily. I hope you enjoy our site. We have had several teens join lately. Hopefully, you can hook up with some of them as well.

I applaud you on your positive attitude. I am sure it is not easy as a teen, but it sounds like your friends are helpful, not hurtful as some can be.

When it comes to driving, try not to over focus on that. Someday you may be able, though in the meantime, make the most of everything else you have. I am generally able to drive, but have had a few times when I wasn't able for 3-6 months.
 
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