Hi everyone,
New to epilepsy and new to the forum.
Brief Bio: Male, mid 40s-
a few weeks ago I was admitted to hospital with what turned out to be a series of partial seizures:
I said Déjà Vu to the doctor's as I couldn't think how to describe it, but it's more like "I've had this nightmare before" and I guess like when you have had a nightmare, and the next day images from it suddenly pop into your head and you feel a flash of the same fear. It's like a ramped up version of that, and it's a series of disjointed images that feel like they are on the edge of my recall but I can't grasp where I seen them of through them before. Its like images from a nightmare and I'm not sure if i really had that nightmare before or not. Sorry I'm still trying to make sense of something with no sense it, so that might be a horrible description! I have noticed today that it seems like there are visual cues in that I look at something and thing I've looked at that before and it starts from there.
I don't know if that makes sense?
Then a feeling of terror, sometimes funny sounds and it ends. When I had the cluster, they started an hour apart, then 45 mins, then half an hour down to 5 minutes apart. By that point I was fairly staggery and slurred between then and not thinking straight. Felt like I was thinking through cotton wool and missing large chunks of time.
So titrating up lamotrigine, just started 75mg today, however so far also had another 3 of the seizures today as well.
EEG showed some unusual activity, (wasn't explained and I was too out of it to ask questions) one of the other scans showed some slight scarring from viral meningitis but they didn't think that would be to blame.
Everyone was great in hospital, but feel completely abandoned now I'm out and not entirely sure what comes next for me. GP Has been great, but you only get minutes with them. Off sick at moment and struggling to imagine going to work again; I'm a lecturer so there is nowhere to hide if I have a seizure. GP said to try and not worry as meds might control it, so wait and see how treatment pans out as it's early days, and there's lots that can be tried between now and panicking!
I had a med question I posted in the kitchen, and I've been having a look around and found brilliant info and help here already. I'm still trying to get my head around this, and figure out how to go forward.
New to epilepsy and new to the forum.
Brief Bio: Male, mid 40s-
a few weeks ago I was admitted to hospital with what turned out to be a series of partial seizures:
I said Déjà Vu to the doctor's as I couldn't think how to describe it, but it's more like "I've had this nightmare before" and I guess like when you have had a nightmare, and the next day images from it suddenly pop into your head and you feel a flash of the same fear. It's like a ramped up version of that, and it's a series of disjointed images that feel like they are on the edge of my recall but I can't grasp where I seen them of through them before. Its like images from a nightmare and I'm not sure if i really had that nightmare before or not. Sorry I'm still trying to make sense of something with no sense it, so that might be a horrible description! I have noticed today that it seems like there are visual cues in that I look at something and thing I've looked at that before and it starts from there.
I don't know if that makes sense?
Then a feeling of terror, sometimes funny sounds and it ends. When I had the cluster, they started an hour apart, then 45 mins, then half an hour down to 5 minutes apart. By that point I was fairly staggery and slurred between then and not thinking straight. Felt like I was thinking through cotton wool and missing large chunks of time.
So titrating up lamotrigine, just started 75mg today, however so far also had another 3 of the seizures today as well.
EEG showed some unusual activity, (wasn't explained and I was too out of it to ask questions) one of the other scans showed some slight scarring from viral meningitis but they didn't think that would be to blame.
Everyone was great in hospital, but feel completely abandoned now I'm out and not entirely sure what comes next for me. GP Has been great, but you only get minutes with them. Off sick at moment and struggling to imagine going to work again; I'm a lecturer so there is nowhere to hide if I have a seizure. GP said to try and not worry as meds might control it, so wait and see how treatment pans out as it's early days, and there's lots that can be tried between now and panicking!
I had a med question I posted in the kitchen, and I've been having a look around and found brilliant info and help here already. I'm still trying to get my head around this, and figure out how to go forward.
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