HI! I'm Dispatch! I learned about ya'll thru Bernard & Birdbomb on the VNS Message Board. Thought I'd become a member, get to know you folks, contribute best I can, and do lots of learning.
I have had seizures from a TBI since 1994. My seizure types vary. I have tonic/clonic (last one in Feb. this year), partial complex (last one about 2 months ago), and my docs are thinking I have absence seizures more often than I realize. I have tried a wide variety of seizure meds from Phenobarb, Depakote, Lyrica, Neurontin, Trileptal, Topamax, Keppra, and quite a few others I don't remember the names...bunches. My seizure activity is fairly well controlled, and at one point, I had 3 years seizure free. It depends on my stress level, health, eating, & sleep.
In 2006, I was implanted with a Vagus Nerve Stimulator for Depression. After suffering horrific side effects & adverse events, the device was shut off and I have had a complete explant including coils. I stimulated 13 months before I found out I was not a proper candidate for the device due to significant TBI. The device increased my brain injury difficulties significantly. I had short term relief by use of the device from depression, but it made me so physically sick, I no longer was receiving any benefit.
Currently I am taking 1,500 mg of Keppra twice daily. My Neuro started me on Trileptal approx 2 months ago, and it didn't take long to become toxic, so that med was discontinued, and the Keppra increased. I have noticed when my Keppra is adjusted, I become more emotional than what is normal for me. I have also been experiencing increased aggitation as well. It has been a rollercoaster lately. Keppra has not been the only med that has had this effect on me. I'd like to blame these things on some life experiences going on right now, but it has been reality that the AED is playing a huge roll in my psychological state.
Anyhoo...just wanted to say HI! I look forward to getting to know ya'll, and hope I can learn bunches from ya.
Have a great night!
Dispatch
I have had seizures from a TBI since 1994. My seizure types vary. I have tonic/clonic (last one in Feb. this year), partial complex (last one about 2 months ago), and my docs are thinking I have absence seizures more often than I realize. I have tried a wide variety of seizure meds from Phenobarb, Depakote, Lyrica, Neurontin, Trileptal, Topamax, Keppra, and quite a few others I don't remember the names...bunches. My seizure activity is fairly well controlled, and at one point, I had 3 years seizure free. It depends on my stress level, health, eating, & sleep.
In 2006, I was implanted with a Vagus Nerve Stimulator for Depression. After suffering horrific side effects & adverse events, the device was shut off and I have had a complete explant including coils. I stimulated 13 months before I found out I was not a proper candidate for the device due to significant TBI. The device increased my brain injury difficulties significantly. I had short term relief by use of the device from depression, but it made me so physically sick, I no longer was receiving any benefit.
Currently I am taking 1,500 mg of Keppra twice daily. My Neuro started me on Trileptal approx 2 months ago, and it didn't take long to become toxic, so that med was discontinued, and the Keppra increased. I have noticed when my Keppra is adjusted, I become more emotional than what is normal for me. I have also been experiencing increased aggitation as well. It has been a rollercoaster lately. Keppra has not been the only med that has had this effect on me. I'd like to blame these things on some life experiences going on right now, but it has been reality that the AED is playing a huge roll in my psychological state.
Anyhoo...just wanted to say HI! I look forward to getting to know ya'll, and hope I can learn bunches from ya.
Have a great night!
Dispatch
Last edited:
fft:
