Hi all my name is Liz,and I am new to this so please bear with me.:dontknow:I had an episode on Monday morning and ended up in A&E,was really scarey,more so for the girl who was with me because I was out cold for most of it.I will try and explain it best I can.It started off as if everything was going blurry then I got a tingle down my left side of my face,shaky hands,blue lips,and tongue going down my throat(dont remember any of this),then just collapsed,came to in t he pharmacy across the road.An ambulance came shortly after and away I went,just got the usual tests in A&E blood pressure,heart monitor and bloods taken.I should receive an appointment to attend the First Seizure Clinic in the next couple of days,but am still quite stiff and sore at he moment and dont really know what to think.Thanx for reading,feels better writing it all down xx
hi I am a newbie ..
- Thread starter twinlizzy
- Start date
Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
Kansas Educator
New
- Messages
- 377
- Reaction score
- 0
- Points
- 0
Glad to have you here with us Liz. I know it's scary but the people on this forum are very encouraging. Keep us updated and don't be afraid to ask questions.
skillefer
New
- Messages
- 2,339
- Reaction score
- 0
- Points
- 0
Hi Liz! Welcome to CWE. Glad to have you here with us. Just wish it were for other reasons. 
We're very friendly, so feel free to ask questions, vent in the padded room, or just chime in. Also, check out the Epilepsy 101 thread in my signature...it's got some good basic information. Also, people can have seizures without it being epilepsy....so don't be surprised if your doc asks alot of questions. Also, try to think back and jot down how much sleep you got Sunday night, what you ate Monday, when and how much, as well as what you drank and how much. Jot down if you've been under any stress or if you have been sick. And then try to keep a journal with that type of info everyday. Also jot if you have any other spells or odd feelings. (THis includes any dizziness, tingling, spasms, migraines, spaciness , etc...)Take the journal with you to your next doctor's appt. It'll give him more information so that he/she can do his best to help you. Also, if you don't already, get yourself on a decent sleeping schedule....at least 7 hours a night....Ok? Many of us find that we're more likely to seize if we don't get enough sleep. Also, if the doc orders an EEG, don't be surprised if it comes out normal....alot of us have EEG's where there's no sign of Epilepsy....
We're very friendly, so feel free to ask questions, vent in the padded room, or just chime in. Also, check out the Epilepsy 101 thread in my signature...it's got some good basic information. Also, people can have seizures without it being epilepsy....so don't be surprised if your doc asks alot of questions. Also, try to think back and jot down how much sleep you got Sunday night, what you ate Monday, when and how much, as well as what you drank and how much. Jot down if you've been under any stress or if you have been sick. And then try to keep a journal with that type of info everyday. Also jot if you have any other spells or odd feelings. (THis includes any dizziness, tingling, spasms, migraines, spaciness , etc...)Take the journal with you to your next doctor's appt. It'll give him more information so that he/she can do his best to help you. Also, if you don't already, get yourself on a decent sleeping schedule....at least 7 hours a night....Ok? Many of us find that we're more likely to seize if we don't get enough sleep. Also, if the doc orders an EEG, don't be surprised if it comes out normal....alot of us have EEG's where there's no sign of Epilepsy....
- Messages
- 378
- Reaction score
- 0
- Points
- 0
Hi !:hello: and welcome . Keep us posted about your appointment. Skillefer has given some excellent advice. If this was your first seizure , then it may not be epilepsy. Then again , as bernard says , you could also have been having seizures without realizing it (I thought i was just clumsy untill i realised i was having myoclonic seizures). All the best.
Thanx for the replies folks,nothing else has happened since,have a docs appointment today just to discuss it,still waiting for my clinic appointment so heres hoping it was just a one off will keep you updated,thanx again and ((((hugs)))) to you all coping with this.xxxxOh and an extra thanx to Skillefer am going to jot down stuff now before I go xxx