Hi, my name is Cathy

[Evo]

I have been lurking a bit and thought I should say hullo.

I am mum to my son who is now 27 years old and suffers several types of seizures the worst (or at least the worst to witness) being tonic clonic leading to status. He takes Lamictal and Epilim in large doses at night and in the morning also Clobazam and ampoules of Midazolam when needed. He is not controlled but his seizures have been reduced to approx. fortnightly and the instances of status have also been reduced with the early intervention of midazolam.

I lost my brother to epilepsy 3 years ago in a drowning accident, he had his first seizure at 26 years of age and passed away at 46 years.

I, myself had tonic clonic seizures in my late teens and early twenties, never to return. I put my seizures down to lifestyle, eg working two jobs and studying and partying and not necessarily in that order, with meds and changing my lifestyle the epilepsy went away. I am not on any meds now and haven't been on any in almost 30 years.

I just wanted to say hello and was wondering if there is anyone here that has epilepsy running in the family.

 

[brain]

Howdy Mate!

:hello: Cathy,

To answer your question; unfortunately,
YES - Epilepsy can run in the family tree,
also known as inherited or genetic traits.

You can view more information by going
here for starters:
EPILEPSY 101

And welcome to CWE and make yourself
a home here - we have Australians on
board here too!

:cheers:

 

[brain]

Moreover, you can also find more
information here as well by clicking
on the banner below:

 

[Evo]

Hi, Many thanks for your reply and the resources.

My son was initially diagnosed at 14 with adolescent mycolic epilepsy after the initial and variety of seizures he had and of course many scans, MRI etc. As the time past the diagnoses became idiopathic. His status epilepsy and cyanosis became a constant medical emergency.

Somewhere between than and now I had forgotten most of what I had been so pro-active in.

My daughter while traveling through India was taking the the drug Lariam for malaria prevention, six weeks into her trip. My daughter developed some sort of epilepsy and I eventually got her home as soon as she was fit for flying.
Now, my daughter is seizure and meds free after 4 years.

I have so many questions as everyone of my family's epilepsy is so different and diverse.

 

[Bernard]

Hi Cathy, welcome to the forum. :hello:

Yes, my wife's family is full of folks who have/had epilepsy. Her mother and uncle both had it. Her grandmother did not (she had diabetes instead), but her parent(s?) had it and so on up the family tree.

 

[Meetz1064]

hi, hello and

how do you do? Welcome to CWE!!

In answer to your question, YES there are several families on here who have family members that have E in their family tree.

I hope you like it here. We are a friendly bunch.....

Take care, and don't forget to check things out around here. Buckeye should be around soon with his yummy coffee.....unless Eric beats him to it.

Meetz
:rock:

 

[morgan381]

Hi, welcome to CWE!
I am one of only 2 members of my family who have epilepsy, the other being my grandmother's sister. When I was pregnant, my neurologist told me that the general public has a 3% chance of being diagnosed, but the child of an epileptic woman has a 3% greater risk than that of the general public. I haven't verified the facts, though.

 

[skillefer]

Hi Evo! Welcome to CWE. My mom's uncle had a seizure when he was in his 40's. Other than that, no history whatsoever. Now, my hubby's family has a history of migraines, and one of his cousins has seizures.

 

[RobinN]

Welcome Evo - Welcome to CWE - very glad that you decided to join the conversation.

It does not run in my family, however migraines do.