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squaccy

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Hello, I'm Squaccy. I've been having "funny feelings" for about a year now and when I went to the doctors about it she said I might have temporal lobe epilepsy. I've been refered to a Neurologist at the local Hospital for an EEG (i think) I'm still trying to book an appointment :(

My "symptoms" are a very peculiar sensation... i cant hear anyone talking or anything, all outside noises just fade out. Then my mind gets bombarded with thoughts, or like last time it was a song. It feels like im in a little box of my thoughts and they're shouting at me or playing really loud. I cant tell you what I'm thinking or what song was in my mind because I can't recall names or even remember them when I come back to reality. When i do come back, i shake, feel sick and my heart races.

I don't get them much- about once a month but i've noticed a severe memory decline...sometimes I forget a sentence as soon as I've just said it. And i get lots of headaches- not severe ones, but those annoying stuffy head ones.

Anyone have any ideas or can relate to me? I don't know what they are :(
 
:hello:

And welcome to CWE, and I am sure it is
a frightening experience for you, and your
Neurologist is doing the right thing by having
you moving on to an EEG! That is the proper
movement!

I strongly recommend you take a read-up
over here by clicking on:

EPILEPSY 101

Your Neurologist will be able to make the proper
diagnostics after when the EEG is performed
and done and then go on from there. Temporal
Lobe Epilepsy and the seizures can range from
different types. So while I could give you a
variety of seizures that "you might" be having,
but I'd rather that the Neurologist would give
you the answers first after having the EEG
done - otherwise, everyone here might put the
cart before the horse and we could be wrong!
And we wouldn't want that to happen!

:?

But HANG IN THERE - you'll have your answers!

(((((((((( Hugs to you ))))))))))))

Feel free to browse around and you'll find a
lot of support here as we're all are friendly
bunch of folks here!
 
Try the

link again. I just got it to work.

If for some odd reason that still doesn't work, you can do one of two things: Click on the words "Coping With Epilepsy" in the upper left of this screen, right under where it says "reply to thread". OR. In the same line of choices, click on search and type in "epilepsy 101". Then go from there.
 
Welcome!
This is a great place or information or just support.
I got diagnosed last year and can truly say this is the best place around to learn.
I have simple and complex partials. During my simple partials, I cannot hear anything...not sure about my complex because I basically am not there and have no memory of it later.
My short term memory is a problem...I have become big on writing lists! Start a list to take with you to the doctor. Also, keeping a journal is helpful.
Jen
 
Hi squaccy! Welcome to CWE. :) There's lots of great information here, as well as fantastic supportive people. :) Feel free to ask questions, chime in, or just vent in the padded room. We all need to vent sometime. Also, many of us here have EEG's that have come back normal, so don't be surprised if yours does too. I am going to be like Brain, and refrain from saying what kind of seizures, if they are seizures, that you're having. :) Instead, I'll tell you to do what I tell lots of others. Start keeping a journal. Write down everything you eat or drink (when, how much), how much sleep you get each night, any odd feelings you have (strange smells/odors/tastes/sensations, headaches, etc...), seizures (how long, where they happened, what you were doing just prior....), and any stress your under ( as well as what you're doing to deal with stress). You're keeping this journal so that you're doc can have as much info as possible, and to see if you can spot anything that might be triggering your seizures. (if they are seizures). If you are having seizures, and you figure out what's triggering them, you might be able to avoid the triggers. :) Sounds like your neurologist is on the ball. So good luck with your EEG, and feel free to wander the site.
 
Hi Squaccy :hello: Welcome to CWE!

You've come to an excellent place for support, encouragement, and information. Pull up a seat and make yourself comfortable. Jump right in with your questions, concerns, or as Skillefer suggested...just to vent.

Keeping a journal is an excellent idea. Reading up on nutrition and it's role in neurological disorders is a wonderful place to start as well. You can take a proactive role in your health by researching alternative methods for treating epilepsy and jot down any ideas you have to discuss with your neurologist after your EEG.

I know this is a scary time, but hang in there. You may find a simple solution through your own journaling and research :)
 
Hi Squaccy - Welcome to the forum
I am positive you will find some useful information here that will help improve your situation.
 
Hi Squaccy! I don't want to diagnose you or tell you what this is because I'm not a doctor but you have pretty much described my seizures! Mine would start with a song in my head that would get really loud and then I would have like a day dream that was the same every time so it was like a deja vu and then when it was over I would be nauseas or vomit. For me it only ever happened in the shower so I don't know about outside noise or people because nobody ever saw me when it happened. Afterwards I can't really tell you what the daydream was except that it was always the same with the same people that I knew them at the time but after I can't describe them. My dr tells me that these were complex partial seizures, I had an EEG, a sleep deprived EEG and an MRI that all came back normal. He put me on Tegretol and I have had no troubles since. It can be pretty scary not knowing what's happening and waiting for answers but this is the best place to come for support. Best of luck with everything, I hope you get some answers soon. Feel free to message me if you want to chat.
 
Hi and Welcome to our site!

I hope you are able to get an appointment soon and get some answers to your questions. Until then, please take care, and feel free to join in the group and ask any questions you need to! :agree:

All the best. -Julie :)
 
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