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mockinbird

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Hi everyone! Although I am an old hand at epilepsy (30+ years), I am new to this forum. Just looking for some like-minded people tonight instead of facebook. A little about me: My seizures are very well controlled and I lead a fairly normal life. I work a full time job that I love, I am newly single after many years of marriage and find myself stressed often due to my teenage daughter (who also has epilepsy). I had my first grand mal in 6 years several days ago. I was alone except for my dogs. Haven't felt well since that day. I guess you could say that I am a little afraid of the unknown. I am sure you guys understand. Anyway, glad to be here. Guess I will go poke around now. :banana:
 
Hey mockinbird, welcome to CWE!

I definitely understand the fear of the unknown. There's that special sensation that comes when you've been seizure-free for a while, feeling good, and then....BOOM! The monkey is on your back again.

I hope you feel better soon, and can recover from whatever stresses may have contributed to your breakthrough seizure. I don't know your age, but sometimes changing hormones can mess with your seizure control too.

Have fun exploring the different forums and threads, and feel free to post, vent and chat as the mood strikes.

Best,
Nakamova
 
Thanks for the warm welcome Nakamova. :) I am mid 40's. The meno monster has been by my side on and off for about 10 years now and yes, those hormones and that "special feeling" can wreak havoc on one's life. Been there done that! LOL I think this last episode was from pure stress though. It is just hard to explain to people without E that a little stress can make you fall-down-go-boom. HA!
 
Teenage daughter = major stress, right? I am childless myself, but have ten nieces and nephews, and I am as aware as a loving aunt can be about the Terrible Teens and what those bring. I still remember my own terrible teenage years!
 
Hi, Mockinbird,

Welcome to the forum!

I am so, so sorry to hear about your tonic-clonic seizure. How scary to be surprised by one after so many years.

Wow... teenagers ARE major stress. They have been scientifically proven to be a major source of baldness (from their parents tearing their own hair out). But in a few years you will have a very lovely young adult to hang around with. :)

Stress is a seizure trigger for me, too. B vitamins help some. Pedicures help a lot. lol....
 
Welcome to the forum, mockinbird! :)

I hope this recent seizure was just a one-off event. I hate the unpredictability of this all too but we have to learn to deal with it somehow :).
 
:cheers:

Welcome to CWE. Come on in and get comfortable. Plenty of room here.

You sound similar to me (except I am a guy). 29+ years of E pretty well controlled for 7 years now. 49 years old and have survived 3 teenage daughters. I am doing well most of the time, but always worry about that next big one. It never seems like an "IF", but "WHEN".

Hope you are feeling better soon. Contact me if you ever need to vent some of that stress, I think I understand where you are coming from. Another great option is our padded room. It is made for venting with absolutely no judgement.
 
Hi Mockinbird - I'm Robin... a bit of a bird house here :D

Welcome to CWE.
I am sure you will feel right at home. I raised three children, two boys and my youngest is Rebecca who is 19. It can be stressful, so find additional ways to raise your seizure threshold. My daughter remains med free and seizures are controlled by making nutritional changes. It is working beautifully. We are working on nutrition and hormones too, so I do hope to continue to see improvement here.

You might need to consider hormonal changes at this time of your life, as being a possible trigger.
 
mockinbird said:
I had my first grand mal in 6 years several days ago. I was alone except for my dogs. Haven't felt well since that day.
Click to expand...

You had your first grand mal seizure in 6 years several days ago? I'll probably start a topic on this eventually, but...

Google Space Weather, February 15, 2011. They wouldn't allow me to post a link yet...

FIRST X-FLARE OF THE NEW SOLAR CYCLE: Sunspot 1158 has unleashed the strongest solar flare in more than four years. The eruption, which peaked at 0156 UT on Feb. 15th, registered X2 on the Richter scale of solar flares.

X-flares are the strongest type of solar flare, and this is the first such eruption of new Solar Cycle 24. In addition to flashing Earth with UV radiation, the explosion also hurled a coronal mass ejection (CME) in our direction. The expanding cloud may be seen in this movie from NASA's STEREO-B spacecraft. Geomagnetic storms are possible when the CME arrives 36 to 48 hours hence. Stay tuned for updates.
 
@ elizzza811: are you saying that solar flares could have been a trigger? Seems like I read that somewhere else. Going to research now. BTW: my seizure was on 2-14-11 at approx 3:30pm and I just happened to be outside on my deck. LOL On the other hand, I have been under a tremendous amount of stress lately and haven't felt "quiet right" for about two weeks. Would be neat to blame it on the sun though. :roflmao:
 
I blame everything on solar flares.

  • Something submitted late? Computer error due to solar flare.
  • Mom didn't get a call from me? Inoperable phone due to solar flare.
  • Didn't wash car? Had to stay indoors to minimize radiation exposure due to... you got it.... SOLAR FLARE
.
 
Hey there

Mockinbird, it's nice to meet you.

It sux a hill o'beans that you had the t/c. 6 years is really a decent streak. But stress, whether from a teenager (I'm your age, and have 2 college grads, with one still in) or something else, can be a PITA.

I'm glad you've found our house party. Mr B has built us an AWESOME house here, and there's tons of people to meet. So feel free to kick up your feet, and relax......the nooks and crannies are great.

Oh yeah. Coffee's on the house, but I keep burning it. Buckeye and Epileric are usually the 2 best sources of it, but I make some great iced tea! :bigsmile:

Hope to hear more from ya!

Meetz
:rock:
 
Nice to meetz you too. :bigsmile:

Yeah it sux a very large hill o beans but I will be just fine. Going for an EEG in two days to see what the heck is up with my noggin. Haven't had one of those boogers in years. I always feel extra sexy when I leave an EEG session with all that yuk in my beautiful tresses....I mean in my dyed hair with gray roots showing. :roflmao: Maybe I should do that color job today instead of next week so that EEG dude doesn't secretly laugh about my roots while he is trying to be all professional. Aw well I guess I could tell him that the solar flares did it. HAHA!
 
Reading your responses, I can see you have one of the best stress breakers, o good sense of humor! Seriously, laughter does all sorts of good things for our bodies. Check out some of CQ's Jokes in the Lounge.
 
Oh yeah BuckEye Fan. Laughter is the best medicine. You know, my first neurologist...he was a pedi neuro, taught me not to feel sorry for myself, to go after my dreams and instilled in me that I could do anything that I wanted in life. Of course, anyone with E knows that you can't do EVERYTHING but that attitude handed to me at a young age made all the difference in how I viewed my "condition" (as he put it) growing up and I still don't feel sorry for myself and try to be all that I can be. Just can't do it in the Army. LOL

When my daughter developed epilepsy at the age of 12, she tried to fall into a pity party but I said, "Oh heck naw!" LOL

It's hard, more so for some than others, but ya just got to put your big girl panties on and go for it. The alternative is drowning in your own tears. No body really cares when you feel sorry for yourself and you become a blithering burden to others eventually. So....when we fall down and go boom, we must jump right back up and say, Oh no you don't!!! :)

Don't get me wrong though, I get into my moods sometimes....who doesn't? But for the most part, ya just gotta fight! I knew yall would agree. :clap:
 
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