How else can I help....

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Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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angelsmom

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Hi everyone....I am the mother to a beautiful soon to be 17yr old daughter named Angel....she started having seizures 2 days after her 11th birthday and still hasn't found a way to cope. She's one of those who smiles on the outside and is sad on the inside. I've tried to get her to get out and meet friends, attend epilepsy camps and such with no luck. I've just recently found a support group I our area in which I am excited to take her too. Finally, she can see that she is not the only one! I am open to any advice, suggestions and anything else that may help her learn to live life to the fullest.
 
Hello and welcome! You might have your daughter look into some of the threads here. In just the past week or so there have been a couple of new members who are young women in the same age range as your daughter. Conversing with them here could be very helpful. Even talking with some of us really, really old people might be OK, too! :)
 
Hey welcome to CWE :) I've been having seizures since I was 6 and this place is helping me a lot and I'm not as old as your daughter is yet. You should show some of the treads on here to her and maybe let her talk to some of the people on here. I don't talk to anyone on here not really but it's just feeling that I'm not alone that helps me mostly
 
Hi angelsmom,

Welcome to CWE, as already mentioned see if your daughter is interested in joining the forum. There a few members on here who are younger & would be able to relate to your daughter.
There is also a special section of the forum called The Loft which is a great place for the teenagers to hang out. You do need to be logged in as a CWE member to have access to that part of the forum though.
 
Hi angelsmom, welcome to CWE! I hope you and your daughter feel free to explore the CWE forums and see all that the site has to offer.

Are her seizures currently controlled? If not, then it's worth being persistent in tracking down meds/treatments that may help, and being proactive in tracking overall health and looking for triggers. There's some good basic info here: http://www.coping-with-epilepsy.com/forums/f22/proactive-prescription-epilepsy-1254/

You might also be interested in this thread http://www.coping-with-epilepsy.com/forums/f32/neurofeedback-rebeccas-story-2733/, in which RobinN discusses the use of neurofeedback and dietary approaches to help control her daughter's seizures.

Best,
Nakamova
 
Welcome to CWE! I have a 14 year old daughter dx'd last February and it has been a learning curve for us, too. I think there is such a fine line for these kiddos. It is hard enough adjusting to high school, friendships, relationships, and the stress of just being a teen. To have a diagnosis on top of all of this...overwhelming. Paige is very sure that she does not want to be treated differently and with this, is very selective about who she shares her diagnosis with. Recently, she has been more open and I am thankful for that. As a mom, it is very hard not to hover and I know that I still struggle with this. I wish you and your daughter the best of luck. And welcome again to CWE!
 
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