How Old Were You When You Were Diagnosed?

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I first experienced feelings of deja vu when I was pregnant with my 3rd son in 1979. Went to neurologist and he said it was nothing. I was 27. Then in 2006 when I was 53 I started having more episodes and more involved (getting up in the middle of the night and going to make dinner, getting dressed and getting back into bed, biting tongue) I then went to a neurologist and was diagnosed with E. Never have had a grandmal (thank God) but in 2008 when my husband passed had very bad episode and ended up in ER. Luckily, I always get a warning and most of mine are nocturnal. Today I'm on 750 mgs. of generic Keppra.
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Wing nut said:
I had my first tonic clonic a month ago. At the young age of 43.
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Hi Wing nut, did you have any smaller seizures before that? Does your neuro know what caused it?

Welcome to CWE. It was created by Bernard out of love for his wife Stacy. That love have permeated throughout the whole forum.
 
15...30 now (yeah time is an illusion...how many times have I said that :lol:)
 
Hey Ruth,
Prior to that first t/c seizure I did not think I had ever had any symptoms. In hind sight I had multiple episodes that I thought were vertigo but had strange halucinatory component.
(Can't remember what those are called )
That started a year ago.
So far they have no idea of cause beyond a history of multiple concussions .
 
Hi Wing nut,

They are called aura's (prelude to a seizure). I hope I spelled it right.
I am sorry to hear that you had a lot of concussions. That is probably the cause of your seizures. Any damage to the brain can cause seizures.

I have vertigo a lot. I was watching a show on TV about mountain climbing. When they got to the top of the mountain, they dropped the camera straight down. It was so scary for me that I told my husband to get out of that show. He did!!

Mine is inherited. My father and his family had epilepsy. It goes clear back.
 
Not sure the exact cause of mine other than it might be genetically passed on to me from another family member...though they had a different type of epilepsy...so yeah not exactly sure...

My neurologist thinks I might of had a stroke as an infant (unborn) and I didn't develop the epilepsy till later...come to think of it when I was living in Alaska at the age of 3 I apparently almost "died" from this really high fever I had...I was also severely dehydrated...I think from having diarrhea...not sure if that has anything to do with anything though...

I still think the cyst in my brain (right temporal lobe) has something to do with it...

I could express what I think/feel personally but yeah...you'd think I was coocoo for cocoa puffs (if you already don't)...but that's okay I'm use to it and I still love you no matter what...I've come to accept that everything is for a reason even if that reason appears to have no reason at all :)
 
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A cyst in your right temporal lobe will definetely cause epilepsy.

I hope I was not being pushy for getting a reason. I apologize if I was.
I also have Parkinson's Disease that causes a severe loss of memory.
 
Ruth said:
A cyst in your right temporal lobe will definetely cause epilepsy.

I hope I was not being pushy for getting a reason. I apologize if I was.
I also have Parkinson's Disease that causes a severe loss of memory.
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Yeah it's "golf ball-sized"...3x4cm...I have some old MRI scans of it...maybe I'll take a picture and upload it...but yeah I'm suppose to be getting MRI's done once a year to monitor it...it's time for another (God I hate having them done but at least they're not as bad as the strobe EEG's)...but yeah apparently it's not growing but I always have these odd feelings/sensations in my head and pretty much throughout my entire body...most of the time I feel like I'm in some "dream world"...and when I get really deep into that "dream world" I feel pressure in my head followed by a headache and a warm tingling sensation that usually starts somewhere in my back and shoots up the back of my neck and "wraps" itself around my head...but when it's really extreme I'll see this "portal" open up and I'll enter it and feel like I'm going into some alternate state of consciousness or "leaving my body"...I can see and hear and feel all these beautiful and terrifying things all at the same time...like I'm in the prescence or generating this huge whirlwind of "light"...levitating in an infinite and timeless dimension...but I can see tortured souls that look like ethereal ooze or melting wax with tormented faces trying to get out of this "pit of bleeding fire"...but I pretty much see all sorts of things when I go into my little "trances"...I had a night terror once (but I always have dreams/nightmares that are intense/vivid)...of that "hellish" image and was jerking violently in my sleep and woke my wife up...she said I was also groaning like I was in pain...and I remember waking up feeling cold and sweaty and weak...the tortured souls as I could see them trying to grab onto me for help but I couldn't move...the closer they got the weaker I got...but I wasn't about to be killed in my sleep by some demon sitting on my chest...
 
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I hope it does not change in size. That would not be good. Unless it went away.

That must be horrible having those nightmares.

You wrote it poetically. We have at CWE, the Lounge in the forum. Why don't you try expressing yourself in the Writer's Cafe. I use to write poems there.
 
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Anything can be considered "horrible" depending on how you look at it...life isn't meant to be "understood"...only experienced...and upon each experience do we learn something new every time...and upon learning something new do we realize that what we thought we knew...we did not

Knowledge...the ledge with a NO sign...staring us directly in the face...a hidden meaning...an unknown wisdom...go beyond the limits of the holographic prison...the illusion will become clear
 
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I was 41 and was diagnosed after a blow to the head. I've gone 2 1/2 months without a tonic clonic or complex partial but have simples weekly. I can live with those... :)
 
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