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stilldancing_98

stilldancing_98

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Hi my name is Teresa. I have had epilepsy for 32 almost 33 years . My son who is 10 has myoclonic epilepsy, and my brother in is seeing now if he has myoclonic. I have had rtl surgery and have been in an induced coma because of status. I love life much more then I did before the coma. Better outlook I guess. I am a single mom. A music lover. I spend a lot of time in the schools. My son has only 1 kidney and has high blood pressure and is slightly mentally retarded. He is in a behavior class.Life is a challenge for us daily. But we have life. And I am happy. We go to Harborview in Seattle WA for our care. And we both see the same epileptologist. I teach the school that he goes to about epilepsy and behavior. And that is about it. I hope I DID NOT not bore you to much. Oh!My brother just moved from London. I here the neurology and oncology is wonderful there once you can get through the red tape.I helped a girl get in the oncology there for some cancer treatment. I had some of that too. So have you gotten the treatment you need yet?
 
Hi Teresa - I moved your post to its own thread so people can make comments to you.

Welcome to CWE. It sounds like you have something that is genetic. Is that right?
I wish you could come teach my daughters school about E. There are a few others here that would like it as well. The educational system isn't very current on the subject.

I hope you find your way around here ok. Feel free to ask questions if you can't.
 
Hi

Hello Teresa,

My mother was single with epilepsy also. Her grandmother had it as did her brother. i wasn't diagnosed until I was 12. Now things seem to get worse before getting better. Don't worry, it WILL get better.
 
Thank-you Stacy

Thank-you Stacy for the positive outlook. My brother has not been diagnosed yet. But I am helping him get some good testing done via my Dr. He lives in New York. I have 2 types of epilepsy. I think my son's Dad has myoclonic, my myoclonic did not come until after a surgery and I aquired some b-cells in my brain and went into status. 2types of epilepsy focal and generalized and a lot of types of seizures. But atleast not the worst ones. Anyway, I am happy. I have a good family. They help me and my son. I was diagnosed at 10 after the chicken pox. Tell me more about yourself. Oh, I love dating now tee hee.:woot:
 
Hi Teresa, welcome to the forum. :hello:

Have you heard about Piracetam? It's used in Europe for myoclonus.
 
Welcome Teresa

Nice to meet you. Hope you like Bernard's site. He's done such a wonderful job!
 
Hi!

I just wanted to drop in & say HI.

We seem to have a love of schools in common. I substitute teach just about every day.

You have a wonderful outlook on life. Very positive, which is great. :woot::woot: And a single mom, too. Wow. Stick around. You'll have fun here.

Take care,

Meetz
 
Cool! new friends!

:roflmao::woot::woot:This is so cool! Thank you for introducing yourselves. I love the positive attitudes. It sounds like fun around here. And Bernard how dare you know of a medication I don't know of . lol just kidding . My epi is a med specialist. We are doing one switch from Topamax to Zonegran. We are not done yet. And I am on Keppra, Lorazepam and Diamox for the fluid on my Brain. I see my epi every 2 mo so I will get some info thank-you.
 
:hello: Teresa!

Welcome to CWE!
Glad to have you here!
 
Welcome Teresa -

I am on a mission here to help educate people about Epilepsy. I fought with my granddaughters school for seizure training and they finally agreed. I set up training at our church and my newest challenge is that I am going to the school board to plead my case for the entire district to be trained.
 
Yea! Don't forget to tell them about the emotions, the dizzyness of meds. Oh that is so great. I am proud of you. And you should be proud of yourself. You look at yourself in the mirror today and say "good job!" to your self. I even do it with my son.Keep me posted on this ok? Teresa
 
And for you Mr King Bernard. Im saying a prayer for your wife. LOL Just kidding. I bet you keep her going with that sense of humor. Teresa
 
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