I am new to the forum

[wildnv]

I had epilepsy for about 15 years it all started when a large tree 80-100 feet tall fell on me and craked my helmet when I was in the army. I have about one grand mal seizures every two mounts. I suffer from Myoclonic seizures an average of once a day but I can go weeks with out getting them & then several a day. I have Complex partial seizures daily several a day, I also suffer from Atonic seizures. But the worst part of it is the migraines.

I am not very emotional I only say this because some of the many Dr. I have seen say this is from my head injury.

In February of this year a I got the flew and had about 60 grand mal seizures. It was a real ruff month. Since then I have not felt the same. I don't know what to do. I have know faith in my doctor so I wont go see her. The bright sunnie days of summer really bring on the worst.

 

[epileric]

Welcome to CWE

Always good to have more viewpoints & experiences.

There seems to be a lot of members in the US military so you're definitely in good company here.

I can't believe the amount of seizures you have, especially when you're sick. have you tried anything other than medications? Maybe one of the alternative treatments would help you.

http://www.coping-with-epilepsy.com/index.php?p=alternative-treatments

 

[RobinN]

WELCOME wildnv
Thanks so much for your service. I have a son in the Marines. Sorry to hear of your mishap.

I wonder what changes in your system during the flu, that increases your susceptability to seizures.

 

[wildnv]

I had bronchitis as well in February I was coifing hard and all the time I thank that was the main change. I would cough till I got so light headed I could not stand.

 

[SteveUK]

Hi Wildnv and welcome,

From your messages / posts it sounds like you've taken quite a lot on board already and, if you don't mind me saying, appear to have lots of seizures. I'm sorry to hear that you have a difficult relationship with your doctor, took me a while to find someone I trusted too, I changed hospital / neurologist 4 times until I found someone I had more of an understanding with.

Welcome to the forum buddy, there are certainly plenty of people who are associated with the forces within the forum.

Steve

 

[Nakamova]

Hi WildNV, welcome to CWE.

I'm sos sorry, you've definitely had a rough patch. Infections can trigger seizures, and some of the secondary effects of being sick (fatigue, dehydration, poor nutrition), can also trigger them, especially if you already have a low seizure threshold. I hope your overall health improves, that should help with reducing the seizures a bit.

It sounds like your current treatment plan isn't working. Maybe it's time for something else -- a new doctor, or a second opinion, a different med, a different approach? I hope you feel free to explore the site to see what other folks are trying/have tried.

Best,
Nakamova

 

[Endless]

Hi, WildNV,

Welcome to the forum! There are really great people in here and really great information.

I'm so sorry about all the seizures you are having. It sounds really rough.

I agree with everthing said before. I want to add that if you took cough medicine or antihistamines/decongestant when you were sick, those over the counter medications mixed with your anti-seizure meds can be a seizure trigger. Topamax and Benedryl was an awful combination for me.

Please take care. And will you let us know how you are doing?

 

[Westwind]

Hey there and welcome !

I often have more seizures when I get sick. Especially the day before and the first day of a cold or flu. My system doesn't like the changes illness causes. Hard to get people to understand that a 'simple' cold will take me out of the game for a day or two.

Thank you for your service, wildnv, I appreciate it !

 

[wildnv]

Thanks for all the kind words.

 

[Ruth]

I had bronchitis as well in February I was coifing hard and all the time I thank that was the main change. I would cough till I got so light headed I could not stand.

Welcome widnv, I am so sorry that you have had such a rough time. I had pneumonia 2 years ago and I have not gotten back up to full strength. I know what you mean.

I have 2 grandsons in the Marines.

This forum was made by Bernard out of love for his wife Stacy. This love permeates throughout the whole forum.