Hey all.
Wanted to share what I have currently started doing.
I have decided to video record my journey.
So far I have recorded myself having simple partial seizures by leaving it running on the coffee table... they also progressed to a complex partial.
I am doing a little introduction on how I came to be diagnosed, why I am now living with friends due to the expense of medical treatment and an explination of me being on and off lamictal .. etc..why I was refered to psych UCLA after being in the psych ward etc
I am now recording my conversations on the phone with UCLA psych as part of this journey. Today I will have a conversation with the Dr there regarding whether or not they are going to prescribe me my medication which is also used for mood...which is why I was orignially put on it.. and their new excuses of ... they dont want to prescribe me these medications becuase my neurologist also uses them for seizures and they dont want to be responsible etc.... (ridiculous) and their other excuse in the past which they now deny (I will try to get this out in the conversation) that I can only see one doctor.
I left a message today asking for an asnwer this week whether they will take me there as I have 2 weeks left of meds (I think roughly) and will need to wean off these...but hey.. they MIGHT just MIGHT take my case on.
I see my neuro on thursday and will talk about this...hopefully I will have an answer before then so it will be a more productive app... I may record this.. or I may just record the notes she types up afterwards if she doesnt want this.
I am recording all discharge papers.. etc.. everything.
If I am not longer treated with medication I will record my ER trips....and how the seizures progress. I will also record my diet.
I am also recording the emails I got from the UK from my old GP about the health care there.. how I will have to wait 4 months for a neuro... and how we barely ever get to see them.. waiting lists for EEGS etc.
If anything (prays not) happens to me, I would like all these videos to be released to the public.
I have what people consider "psychic" seizures when I have a complex one. At the very beginning of the year when my epilepsy only affected me when I was falling asleep or waking up...I had a sensation come over me one day that I was not goin got make it to 2010. I brushed it off.. thought it was crazy.
As the year has progressed and these things are falling into place, I am wondering if this seizure I had was infact a psychic seizure, and its one reason I am video recording my journey.
Wanted to share what I have currently started doing.
I have decided to video record my journey.
So far I have recorded myself having simple partial seizures by leaving it running on the coffee table... they also progressed to a complex partial.
I am doing a little introduction on how I came to be diagnosed, why I am now living with friends due to the expense of medical treatment and an explination of me being on and off lamictal .. etc..why I was refered to psych UCLA after being in the psych ward etc
I am now recording my conversations on the phone with UCLA psych as part of this journey. Today I will have a conversation with the Dr there regarding whether or not they are going to prescribe me my medication which is also used for mood...which is why I was orignially put on it.. and their new excuses of ... they dont want to prescribe me these medications becuase my neurologist also uses them for seizures and they dont want to be responsible etc.... (ridiculous) and their other excuse in the past which they now deny (I will try to get this out in the conversation) that I can only see one doctor.
I left a message today asking for an asnwer this week whether they will take me there as I have 2 weeks left of meds (I think roughly) and will need to wean off these...but hey.. they MIGHT just MIGHT take my case on.
I see my neuro on thursday and will talk about this...hopefully I will have an answer before then so it will be a more productive app... I may record this.. or I may just record the notes she types up afterwards if she doesnt want this.
I am recording all discharge papers.. etc.. everything.
If I am not longer treated with medication I will record my ER trips....and how the seizures progress. I will also record my diet.
I am also recording the emails I got from the UK from my old GP about the health care there.. how I will have to wait 4 months for a neuro... and how we barely ever get to see them.. waiting lists for EEGS etc.
If anything (prays not) happens to me, I would like all these videos to be released to the public.
I have what people consider "psychic" seizures when I have a complex one. At the very beginning of the year when my epilepsy only affected me when I was falling asleep or waking up...I had a sensation come over me one day that I was not goin got make it to 2010. I brushed it off.. thought it was crazy.
As the year has progressed and these things are falling into place, I am wondering if this seizure I had was infact a psychic seizure, and its one reason I am video recording my journey.
i hope so. If you have a youtube acc subsribr to me, i hope to add these new videos soon... and if you dont.. go look at my 2 vids anyway.