gr33nr0se
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this may not have much to do with epilepsy but i'm comfortable writing on this site.
personally, i think teaching hospitals are great, but the whole thing is very awkward. i don't think any of them realize how uncomfortable they make the patient. the other day i was at my rheumatologist, there was the attending rhuemy, her resident, the nurse practitioner, her student, my parents, and a psychiatrist from a lupus support group. i actually had to tell them to talk to me because it felt like i wasn't even there.
my neuro is not pediatric and i love it. i connect really well with her and she talks to ME not just my parents. turns out rhuematology is different, i need a peds rhuemy so i always feel kind of excluded from everything. and i know epilepsy is confusing, but try understanding lupus. no matter how much research i do, i can't get it and i don't even feel like its possible to explain. i don't know why this visit was so awkward either. when i was in the hospital over the summer, there were 6 residents and an attending surrounding my bed, but it was like they were more subtle and realized how uncomfortable i was.
my rhuemy is really smart and she saved me from staying on an extreme immuno suppressant when the other dr put me on it unnecissarily. i know she listens to me but i don't connect with her and i just feel awkward the whole time. i'm not sure what to do. i'm thinking i should just deal with it because she's a good dr, but its so uncomfortable.
personally, i think teaching hospitals are great, but the whole thing is very awkward. i don't think any of them realize how uncomfortable they make the patient. the other day i was at my rheumatologist, there was the attending rhuemy, her resident, the nurse practitioner, her student, my parents, and a psychiatrist from a lupus support group. i actually had to tell them to talk to me because it felt like i wasn't even there.
my neuro is not pediatric and i love it. i connect really well with her and she talks to ME not just my parents. turns out rhuematology is different, i need a peds rhuemy so i always feel kind of excluded from everything. and i know epilepsy is confusing, but try understanding lupus. no matter how much research i do, i can't get it and i don't even feel like its possible to explain. i don't know why this visit was so awkward either. when i was in the hospital over the summer, there were 6 residents and an attending surrounding my bed, but it was like they were more subtle and realized how uncomfortable i was.
my rhuemy is really smart and she saved me from staying on an extreme immuno suppressant when the other dr put me on it unnecissarily. i know she listens to me but i don't connect with her and i just feel awkward the whole time. i'm not sure what to do. i'm thinking i should just deal with it because she's a good dr, but its so uncomfortable.