I know how u feel as far as dx goes. I've has seizures (complex partials) since I was six but didn't really know what they were until later on when it started becoming a problem in school. After more testing I was dx twice with CPs and wasn't on meds due to moms fear. I was born three months early as an identical twin who also has E. We both had major health issues and lots of meds already and it scared her a lot. To her our seizures weren't bad enough to require meds and for as long as I can remember she would tell ms that my brain was taking a break lol.
When I was in college they were getting worse and longer and it was time for more testing in which I got in office EEGs which showed driving response but no seizure itself, an MRI which was normal. I then had an AEEG and it picked up seizures, driving response, spike-n-wave which helped dx it yet again. So I've been dx six times in my life with Epilepsy lol.
I cried when I was told it showed up on EEG and what all it meant. You always try think of what it can be or what not.
I had been on Tegretol for a short time when I was 13 then again from 22-26 but discontinued it.
Unfortunatly one med doesn't do it.
I take Keppra XR, Lamicatal XR, Zonegran (sz/migraine) and now have an Epileptologist and hope to reduce meds soon after better control.
Frustrated a bit right now but hopeful.
Knowing for sure and not having to guess is a good feeling although no one wants to have a medical condition at all.
Congratulations and I'm happy for you. My twin and I know how you feel.
Take it easy
Crys and Dani
