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The team concurs that I'm a great candidate for surgery.
Apparently it's a classic case, no complications, not too deep, they can see the lesion and its location clearly... they are quite positive about going ahead.
The resection is my left amygdala and approx. 1/3 of the left hippocampus (anterior). Some concern about verbal memory loss but as anything we wouldn't know until it's done. As I've had E for 18 years they figure my right amyg and hippo should be fairly used to running the show by now, so hopefully any changes wouldn't be too drastic.
Back on lamotrigine mostly for the mood stabilizer but hey if it helps the seizures for now great, and she wants me to give vimpat another shot :sad:.
Time of surgery is mostly up to me, can be in a few months or a year if necessary. As for possible reason why this all started out of the blue at 15, she stated that our brains are still growing into our 20's and while it was still growing in that area something between the amyg and hippo likely connected to form the ideal seizure condition.
They will send part of the lesion to pathology so we can know what it actually is, and though she has said 'tumor' a few times she followed up with 'unlikely as it hasn't changed or grown throughout any mri's.'
To me this feels two-fold - have brain surgery and then wait for news on what was in you. GULP. At this point I'm stressed enough the last thing I want to add is biopsy results. But... a person has to know.
This all of course is based on me deciding to do it.
onder:
So... thanks all for following me with this (thank *#!*!@ the waiting is finally over) and now it's time for decision-making. And lol a glass of wine.
HUGS.
Apparently it's a classic case, no complications, not too deep, they can see the lesion and its location clearly... they are quite positive about going ahead.
The resection is my left amygdala and approx. 1/3 of the left hippocampus (anterior). Some concern about verbal memory loss but as anything we wouldn't know until it's done. As I've had E for 18 years they figure my right amyg and hippo should be fairly used to running the show by now, so hopefully any changes wouldn't be too drastic.
Back on lamotrigine mostly for the mood stabilizer but hey if it helps the seizures for now great, and she wants me to give vimpat another shot :sad:.
Time of surgery is mostly up to me, can be in a few months or a year if necessary. As for possible reason why this all started out of the blue at 15, she stated that our brains are still growing into our 20's and while it was still growing in that area something between the amyg and hippo likely connected to form the ideal seizure condition.
They will send part of the lesion to pathology so we can know what it actually is, and though she has said 'tumor' a few times she followed up with 'unlikely as it hasn't changed or grown throughout any mri's.'
To me this feels two-fold - have brain surgery and then wait for news on what was in you. GULP. At this point I'm stressed enough the last thing I want to add is biopsy results. But... a person has to know.
This all of course is based on me deciding to do it.
onder:So... thanks all for following me with this (thank *#!*!@ the waiting is finally over) and now it's time for decision-making. And lol a glass of wine.
HUGS.
