I have WHAAAT??(New here)

[MAB]

nope, that's not what it means.
simple partials do not bring any loss or change of consciousness, so it's not considered a driving risk. however, they can turn into another seizure at any time, and if that happens the loss of license is expected, and is the law.

Thanks for clearing that up for me. That is why I am trying to take excellent care of my health so that I hopefully can lower the risk of any more simple partials and especially any other type of seizurers.

 

[Teeny]

To all: I have simple partial seizures. My dr told me i am not a risk. If he thought I was then he would report me to dmv. So thanks for your concern. If i have a seizure, i do make a point not to drive for a while. 6 mths? No. I dont have tonic clonic. I had one and that was over a year ago when i was home drinking. I appreciate all your input and it isnt anything I dont think of already. Also, I do not drive with my grown children in my car. My boyfriend does. However, yes I do drive to work. I have limited my driving but have been driving just fine for 28 yrs. I know what I have and the risks but if my neuro says i can drive, unless i have a seizure, then i am going to drive. So can we please get off the driving subject. I know you are all trying to educate me, but I know already. I do look up as much info as possible on E. I try to be funny about my food intake, i dont drink or do drugs. I want to here your stories. Stuff about your seizures. Just to know I am not alone in this. I dont need to be told repeatedly about not driving. So please, lets share and not be each others parent. I need friends that understand. So please, lets start over.

 

[qtowngirl]

okay, welcome
my epilepsy began 20 years ago this april, with simples for the first 9.5 years, to date have had 1800+. then grand mals started in 2003 and have had 13, not counting the simples, a few complex and 3 grand mals in the seizure unit oct/2012.
a lesion was found in 2011 that's been there all my life (cortical dysplasia) and i had brain surgery august/13. have lost my license 7 times over the years and post-surg i am to get it back in 9 days. 181 days seizure-free today and very stoked.
i HATE simples very, very much. mine were of the psychic nature with instant fear, was best if i didn't move or try to talk, and if they went beyond one minute i knew to get somewhere safe such as middle of my bed.
arnie and i have named ourselves the simple partial soldiers on here as combined we've had them for 50 years. ask away

 

[Nakamova]

Hi Teeny --

Just wanted to add my welcome! You are definitely not alone. I hope you feel free to explore all the forums here, and post and vent and chat as the mood strikes. There's a ton of good stuff in the archives, and please don't hesitate to start a thread if you have a particular concern or questions.

I'm one of those who never got to experience the "joy" of simple partials. I had tonic-clonic seizures that arrived out of the blue when I was in my mid-thirties. In retrospect, there may have been some earlier things that were in the vein of simple partials, but they were so tiny and so infrequent that they didn't register. And I don't get any partials/warnings now. I've had at least a dozen seizures, but I've been fortunate to have them controlled by meds for the last 6 years. I was also lucky to have my epilepsy diagnosed right away, after the new onset seizures. I've tried three different meds -- Dilantin (worked fine, but side effects on gums), Zonisamide (a nightmare), and Lamictal (not perfect but more-or-less tolerable).

Some fun(?) threads to check out:
http://www.coping-with-epilepsy.com...injury-youve-suffered-grandmal-seizure-12692/
http://www.coping-with-epilepsy.com/forums/f23/wheres-worst-place-you-have-had-seizure-15337/

 

[qtowngirl]

I'm one of those who never got to experience the "joy" of simple partials.

i assume you mean 'how much affect they really have.'

for many of us simple partials have alot of negative effect on our lives, and yes they're a blessing in the sense that you get a warning, however, on their own they can be hell. :crying:

 

[MAB]

i assume you mean 'how much affect they really have.'

for many of us simple partials have alot of negative effect on our lives, and yes they're a blessing in the sense that you get a warning, however, on their own they can be hell. :crying:

I have only experienced simple partials, and although I am thankful they are only simple partials, they sure aren't a picnic.

I think my family doesn't understand how much they affect me because they aren't even aware that I am having one unless I tell them.

 

[Nakamova]

You should know me well enough by now qtowngirl! Definitely sarcasm on my part. I was implying (or meant to imply) that simple partials are anything but joyous. Based on what I've learned from CWE, simple partials truly suck: Often mistaken for other disorders or dismissed altogether, difficult to treat, and misunderstood by folks who think E only comes in one flavor. Believe me, I am humbled by what others have suffered with E and know my journey with it has been comparatively easy.

 

[Tamarah]

I have whhhhaaaatttttt???????

I understand your being angry. I'm less angry, and more embarrassed. I can't imagine how I look when I seize, and sometimes during them I am incontinent. After my postictal phase, I have noticed that more than once my husband has cleaned me up and changed my clothes. I don't want to be like this!!!!

 

[Belinda5000]

Tamarah,
Do you think anyone wants to have seizures?I've had them all my life and busted my head open more times than I've been alive.I don't enjoy hurting myself.I've lost control of my bladder plenty of times.That's it don't let it control you the epilepsy.

 

[PixiDust]

Hi Tamarah,
Okay: So I have had epilepsy for 24 years now so let me offer a little advice, along with what others here have given you. If you look at my profile,s
ou will see I currently have simple partial seizures, but it started with grand mals. I once went into status because of an unresponible doctor. Saying that, when you decide on a doctor check their history. having your husband help you after a seizure is nothing compare to almost dying. So to be candid: get it together! While CWE is a great site for support, the best support only you can do. Only you control your life, not epilepsy.

-to live, to live will be an awfully big adventure