If you could trade E

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

TeeTees

New
Messages
919
Reaction score
1
Points
0
Just a general question, but possible interesting :

If you could trade in your E for any other illness/disease, what would it be and why ? :ponder:
 
Very interesting question.....

REALITY: ....E makes me.....I wouldn't trade it---just battle it. (that sounds really odd?)

COMEDY: Foot-in-mouth disease (no wait...I already have that one.)

UTOPIAN: Whatever disease actually has some REAL beneficial side to it...such as a by-product of living with/treatment of said disease creates some kind of mutation that ends up being the cure for all other diseases.

:twocents:
 
I agree. We just need to face it.
As a caregiver, I don't think that I would want to trade E for anything else. Every disorder/illness/disease has complications. I have seen horrible med side effects, memory loss, injuries from seizures, etc. I also spent countless hours in a hospital after my mother had a heart attack, watching her die. For 3 weeks, I watched her body slowly shut down until she finally left this earth.
 
Epilepsy.

[/B]Epilepsy is always a challenge. Kind of like boxing.:mrt: :rock:
 
I'd trade it to be normal - Disease-Free!

:)
 
I wouldn't trade E for another disease. But I would trade one of my legs. If that was a possibility, I'd do it in a heartbeat.
 
As her primary care giver, I wouldn't trade this for anything other than her to be completely healthy. To this day I still have moments where I am sure this is my fault...which bites.
 
I wouldn't trade E for another disease. But I would trade one of my legs. If that was a possibility, I'd do it in a heartbeat.


I was wondering if you would feel the same way about giving up your leg if you were told that you would go through many of the same emotions. Depression, not being able to do things that you could before.
 
Oh my - Deep question

:ponder:

I have thought about this quite a few times since it was first posted. Of course, I would like to get rid of it, but as others have said, no serious disease is easy. I lost my Dad to heart failure. My Mom and Sister are fighting cancer. I am related to people with MS, diabetis, and autism. I can't say that I would want to trade with any of them.

But philosophically, I wish I could trade it for something that I could see. Something that I could actually fight. Something with more hope for a true cure. I think it is that invisibility of E that probably frustrates me the most. Its like trying to take a swing at a ghost.

When I blew out my ACL (knee), I could have surgery and then work like hell to get through rehab. Up until recently, I didn't see that as a possibility for E. Some of the new alternatives may offer some hope there. Even if they don't work completely, taking the fight to the E instead of rolling with the punches may help emotionally.

:ponder:
 
I was wondering if you would feel the same way about giving up your leg if you were told that you would go through many of the same emotions. Depression, not being able to do things that you could before.


Yes I would. As it is right now, no matter how hard I try I just can't do everything I'd like to do. My E keeps holding me back. For every step forward I make, E throws me back four. So if was possible for me to rid myself of E by giving up my leg I would. Sure I would have to do lots of physical therapy before I can walk, run, etc. But IMHO it would be well worth it not having E anymore. You have to remember E has ruined over 20 years of my life. So this would be a miracle in disguise.
 
I was wondering because in our house, we have both. My granddaughter has E and my husband is a below knee amputee due to a work accident. He has had 6 surgeries in 7 years and still continues to have problems. He gets very depressed because he can't work. Last summer, his daughter wanted help learning how to ride a bike without training wheels and he couldn't run alongside her to help her. She would tell us how her mom's boyfriend was helping her and I would see the tears in my husband's eyes. He does work very hard on all of our fundraisers for our foundation. Everytime he sees a below knee amputee, he approaches them and talks with them.
 
I knew this would probably come across to some people as a real strange question, but it was just really a general Philosophical question.

I have often wondered if I was given the chance to have anything else (illness/disease/disability) rather than E, would I trade it in......and I kinda can't find an answer.

On the UP side with E, for me anyway, is that due to having Aura's I can 'hide' my Sz's by making my way to a safe/personal place away from others, where if I traded it for something such as losing a Right Leg, as BIGMAN put, would I actually prefer that as it's more visual and physical, where E is more of a mental issue.

I know, it's a strange question, but sometimes it's questions like this that make you realise, it ain't all THAT bad
 
hhmmmmmmmmmm

I'd trade it for normalcy..........I'd LOVE to be able to go without meds for the rest of my life and not worry about ever having a seizure again. YEAH RIGHT!

Like Buckeye, I have relatives with the same problems, with a few others tossed in.

E's done sooooo much damage to my body over the years, I've picked up more health problems, so I really would LOVE to be rid of it, if I could....in some strange way (though unrealistic, I know) I sometimes think that if I could just get rid of the E, I could get rid of the other health problems......*SIGH*
 
Back
Top Bottom