If you use diastat-

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

Sevenup

New
Messages
9
Reaction score
0
Points
0
how long into the seizure do you use it?

(asking for my son, Dr's are giving us 3 different answers)
 
That answer for us was if the sz wasn't resolved after 5-7 minutes depending on the severity, meaning did it look like it was going into status. Our epi was very adamant that we use it sparingly, and we used it sparingly, however because Rachel's sz were so severe and did go into status so often his fear was she would become unrescuable if it were used too frequently.

What are your doctors saying. Personally, I would go with what the specialist says.
 
Our Dr. had gave it to us at our sons 15 minute seizure last year, since then hes had us using it at 5 minutes. I was just wondering as last time we went to the ER, they told us we should never use it before 10 as it can cause the patient to become "immune" to it over time and it won't work when needed. The neuro on call told us we should be giving it at 3 minutes since hes gone to 15 before..

I think were going to stick to 5 minutes, however.. I just wondered what others do.

the diatstat has GREATLY improved my sons recovery after a seizure, before he would be totally knocked out/heavy sleep/unwakable for about 6 hrs, now hes at least moving around in 2 hrs and sitting up talking in 3, even if its still a sleepiness and soreness that comes over him.
 
Diastat

I dont have long seizures but I do have clustered seizure. If we are at home we use it after 3 or more seizures. If we are not (Like Yesterday) we use it as soon as we get home. It works great and unlike Adivan I'm not a zombie for the next 12-24 hours.:rock: It may not be the most comfortable stuff to use but as far as I'm concerned it's the best medicine out there of it's type;
not that I have tried them all, but probably most.
 
Back
Top Bottom