I know that everyone says that they are frustrated and don't know where to turn to when something like this happens, and I can completely agree. I'm LOST!
I was in a automobile accident on January 9, 2008. T-Boned my car...the other person's fault. No broken bones, but alot of serious soft tissue damage. Which has turned into Fibromyagia, Bruscitits, and Chronic Pain Syndrome. Then starting this past January, I started having problems with my eyes. Anytime I'd go near florescent lighting, I'd actually go blind. My eyes would flutter and finally shut completely, only opening when I was in the sunlight for a while.
About three months ago, I ended up with my first seizure. Nasty! As they have been increasing in duration and getting closer togeather, we went to my doctor. I was hospitalized....all they did was watch me! Everyday I had a seizure. Some when I just woke up! No stress...nothing!
Now, I have between 1-5 every day. They last in duration from 5 mintues to 45 minutes. I have full body seizures and it is so very exhausting! My mom puts icy cold cloths on my head as I produce so much heat that you can feel it permiating off of me. She can change the cold cloths every couple of minutes, and I still am hot! Then when the seizures subside, I get very cold! Two or three blankets and I'm still shaking.
I don't blank out, but am conscious through the entire episode. My jaw clenches so tightly that I can barely open it when it finally stops.
My doctor went on vacation and said that he couldn't do anything for me...that I had to go to a shrink....since it's all in my head! I was furious! Then I did some research and now I understand it better. But I still don't know what to do or if there is anything that I can do to stop these.
Anyone with any suggestions would be greatly appreciated.
Mona
:roflmao:
I was in a automobile accident on January 9, 2008. T-Boned my car...the other person's fault. No broken bones, but alot of serious soft tissue damage. Which has turned into Fibromyagia, Bruscitits, and Chronic Pain Syndrome. Then starting this past January, I started having problems with my eyes. Anytime I'd go near florescent lighting, I'd actually go blind. My eyes would flutter and finally shut completely, only opening when I was in the sunlight for a while.
About three months ago, I ended up with my first seizure. Nasty! As they have been increasing in duration and getting closer togeather, we went to my doctor. I was hospitalized....all they did was watch me! Everyday I had a seizure. Some when I just woke up! No stress...nothing!
Now, I have between 1-5 every day. They last in duration from 5 mintues to 45 minutes. I have full body seizures and it is so very exhausting! My mom puts icy cold cloths on my head as I produce so much heat that you can feel it permiating off of me. She can change the cold cloths every couple of minutes, and I still am hot! Then when the seizures subside, I get very cold! Two or three blankets and I'm still shaking.
I don't blank out, but am conscious through the entire episode. My jaw clenches so tightly that I can barely open it when it finally stops.
My doctor went on vacation and said that he couldn't do anything for me...that I had to go to a shrink....since it's all in my head! I was furious! Then I did some research and now I understand it better. But I still don't know what to do or if there is anything that I can do to stop these.
Anyone with any suggestions would be greatly appreciated.
Mona
:roflmao: