I'm BAAAAAACK!!!!!

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

R

Rose

New
Messages
24
Reaction score
0
Points
0
Hi,
I haven't posted in forever but that is because I have finally decided that I control my seizures, they don't have control of me. Actually, I have been using biofeedback and behavior modification as well as 800 mgs of tegretol to control them......

Peaceful Hugs

Rose
 
Welcome back Rose

Congratulations on getting your seizures under control :woot:. I'd love to hear more about the details of behaviour modification. I've been accepted into a treatment group for epileptics to get Cognitive Behavioural Therapy. Is that what you're referring to?
 
I got involved with a research study at Oregon Health and Sciences University in Portland Oregon using the Andrews-Reiter method that using deep breathing and meditation to control seizures. It also includes assertiveness training. Its hard to explain but since I have been in the study( at the beginning I was having at least 5 seizures a day 7 days a week) I am down to maybe one every 18-20 months if that and that is only under extreme stress.

Rose
 
Rose said:
I got involved with a research study at Oregon Health and Sciences University in Portland Oregon using the Andrews-Reiter method that using deep breathing and meditation to control seizures. It also includes assertiveness training. Its hard to explain but since I have been in the study( at the beginning I was having at least 5 seizures a day 7 days a week) I am down to maybe one every 18-20 months if that and that is only under extreme stress.

Rose
Click to expand...

That sounds fantastic! Is this what you were involved in?
http://www.andrewsreiter.com/work.html
 
Welcome back Rose! I am so glad to hear that you have responded so well to your treatments. That is absolutely wonderful! I am currently dealing with daily seizures, and I have just started neurofeedback. I would love to see some positive results. :e:

Good to have you here with us again! :agree:

Take care.
-Julie
 
Awesome news Rose. I am so thrilled to hear this.
I hope you can share your story with others here. We have been considering using the book as a guide and open a group here for others who want to work on this from home.
 
The cool thing is that for part of the study, I worked directly with Donna Andrews and keep in touch with her via e-mail on a regular basis( as regular as can be, considering she is a very busy lady and I have to limit my computer time because of it being a trigger for me)

Rose
 
Nice to see you again Rose and fantastic news on the seizure control. :woot:

Perhaps you could elaborate a bit more on your experience with Dr. Andrews' therapy in the History Book forum (see the sticky thread before posting)?
 
Hi Rose :hello: Welcome back!!! Congrats on taking control of your life again :clap: That's amazing!!!
 
Heeeey - here comes the Rose, here comes the Rose.

Welcome back. Glad to hear YOU're in control, and not the other way around :clap:
 
Welcome back :rose:!

And that's great news to hear!
But should we change your ID to
"I'm BACCCCKKK"? and put the
Terminator as your Avatar?

(KIDDING!)

It's always wonderful to see our
old originals back! Please STAY
here - don't disappear (hinting
Meetz to lock the doors)!

Sit down and browse around and
:cheers: & :pop:
 
You must log in or register to reply here.
Back
Top Bottom