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treelo814

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I am also new to this sight as of today. I, until now have felt so scared and alone. I was diagnosed with epilepsy in august of this year. I have had three Tonic clonic seizures with the latest one being last Friday. this was the first seizure I have had in Public. My husband and I went to a resteraunt for dinner and as a friend approached us I could not speak. The next thing I knew I was in the kitchen at my house, My husband said lets get you to bed and I said why? And he said you just had a seizure. I said no
i didn't he said do you remember going out to dinner? and I said yes. He said do you remember eating? My jaw just dropped. I have not been able to use my left arm because of muscle pain sense. It is gettting better but it has been a week and I still need help showering and getting dressed. The doctor won't perscribe me anything for pain because he doesn't want it to interfere with my Antiseizure meds. Please if anyone has any advise I would love to hear it. Thank you all so much!
 
Welcome Treelo

Sorry to hear about your seizures. It sounds like you're going through a lot more physical pain than I ever did.

What medication(s) are you on? There must be something that doesn't interact with them, though I have a low opinion of pain killers. Pain is so we know not to move a part of our body a certain way so it can heal. Without that warning we heal a lot slower.

I did give you your own thread here so you can get all the advice everyone has to give. Meanwhile get comfy & look around. I'm sure you'll see experiences very similar to yours.There's a great crowd of supportive people here that should be around soon to say "hi" & "welcome".


Hi & Welcome!
 
Thank you Epileric, I am taking 1500mg of Keppra a day. I was just moved up to that from 1000 mg a day after this last seizure. I have never had muscle pain like this before. But I am with you on the pain med thing. I don't like how they make me feel anyway. I am just afraid if I keep staying up in the middle of the night with the pain I am going to have a nother seizure from lack of sleep. Thank you so much for giving me my own thread I am still trying to find my way around so I didn't know how to start a new thread. Thanks so much for the welcome!
 
You're very welcome for the welcome:).

I know I was on Keppra for a while but the side-effects were to extreme for me to stay on it. One of my side-effects was extreme anger (kepprage) & for some people vitamine B6 does help. My problem that another problem was extreme forgetfulness so I rarely remembered to take it.

As far as your pain goes, does alternating heat & cold help? That's the only thing I can think of right now. You also might want to talk to a physiotherapist or massage therapist.

I don't know if you're doing anything for you seizures now but I would suggest you start keeping a diary of when you sleep & how well, when & what you eat, how you feel & if you take any other medicine for any reason & when you have a seizure. You actually might find what triggers your seizures or what things tend to increase the chances of you having one.

For future reference, to start your own thread just go to the room that all the threads are listed in (like "the foyer", kitchen, padded room etc. ) and at the top & bottom of the list on the left is a button that says "new topic".
 
I do notice mood swings with the Keppra but so far have been able to keep it under control. I set my alarm on my cell phone to go off a 9a.m. 3p.m. and 9.p.m. It works great because even if I don't hear it the first time it goes off every two minutes until I turn it off. It had been a God send to me. We did not try alternating heat and cold yet but we did use the moist heat and it helps but just for a short time. I will try the heat and ice tomorrow though ,thank you!
 
Hi, Treelo,

Welcome!

I'm so sorry to hear about your TC. And your arm. Try putting alternating ice and heat on it. (crushed ice in a ziplock, inside a pillowcase OR a big icepack/gelpack from the drugstore)

Definitely ask your doc for a prescription/referral for physical therapy. The therapists can reduce the pain in your arm with whirlpools, massage, stretching, excercises. I was amazed what they can do.

I'm glad you are on meds. I was on Keppra for awhile, but side effects caused my doc to take me off. I'm hoping this is one that works for you. (Everybody is different!) I agree with Eric about B vitamins. I think they helped me a bit.

Hang in there. We're with you. <<<hugs>>>
 
Hi Treelo!

I injured my shoulder during a seizure (I dislocated and ripped the labrum in the shoulder socket), so I know how painful it can be. But I don't understand why your doc is worried -- there are plenty of pain meds that won't interfere with the epilepsy meds. In fact, when I had surgery to repair my shoulder, I was given a rx for Percocet, and had no problems taking that and my epilepsy meds concurrently.
 
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