Miss Choccy
New
- Messages
- 97
- Reaction score
- 0
- Points
- 0
Hi All,
I'm new to this site - however not at all new to forums since I am a member of few - all to do with epilepsy. If any one of you is am member of other forums my name Miss Chocy might be familiar to you.
I have tc's - have had epilepsy for over 19 years. For the first 17 years I didn't have any warning before before the tc. However, in the last few years I've been getting buzzing in my ears before hand. However, it doesn't give me any time to make myself safe - as it only gives me abut a few seconds then I have the tc.
Luckily for me my e is well controlled however not as controlled as it once was, My last seizure - as of today (03 Feb 2010) was in early December 2009. I am currently taking tegretol retard (don't know what its called in the USA/Canada or other parts of the world - sorry!). I take 800mgs/day of it - 400mgs @ 7:15am and the 400mgs @ 6:15pm. I have been on two other AEDs - epanutin (which is known as dilantin in many other parts of the world including North America) and Lamotrigine. For many years - I was on epanutin - until the last few years - which I had to come off it as it started to give me dizzy spells - which worsened until I was have multiple sesver dizzy spells every day. I then tried lamictal but it didn't do anything for my epilepsy so, came off that and went back onto the epanutin. After a few weeks of being on full on my old dose of epanutin started to come the epanutin - which I'm full off now - thank goodness - and have been for a while now - maybe 1 or 2 yrs - think more of a year - and now only taking tegretol retard, which controls my e and although I get se's from it I find that they are manageable and only minor.
I'm 38 years old but very young for my age - and am very proud of it too. I very happy I have found this site and so far, have enjoyed using it alot. Hoping I continue to enjoy using it - think I will.
I used to live in Canada - west coast - BC for 23years - and was diagnosed with having e there. Was born in the UK and went back there in March 1997! And might go back there one day -as I do feel more Canadian then I do British. No offence to any of the British people who use this forum!
Susan
Miss Choccy
I'm new to this site - however not at all new to forums since I am a member of few - all to do with epilepsy. If any one of you is am member of other forums my name Miss Chocy might be familiar to you.
I have tc's - have had epilepsy for over 19 years. For the first 17 years I didn't have any warning before before the tc. However, in the last few years I've been getting buzzing in my ears before hand. However, it doesn't give me any time to make myself safe - as it only gives me abut a few seconds then I have the tc.
Luckily for me my e is well controlled however not as controlled as it once was, My last seizure - as of today (03 Feb 2010) was in early December 2009. I am currently taking tegretol retard (don't know what its called in the USA/Canada or other parts of the world - sorry!). I take 800mgs/day of it - 400mgs @ 7:15am and the 400mgs @ 6:15pm. I have been on two other AEDs - epanutin (which is known as dilantin in many other parts of the world including North America) and Lamotrigine. For many years - I was on epanutin - until the last few years - which I had to come off it as it started to give me dizzy spells - which worsened until I was have multiple sesver dizzy spells every day. I then tried lamictal but it didn't do anything for my epilepsy so, came off that and went back onto the epanutin. After a few weeks of being on full on my old dose of epanutin started to come the epanutin - which I'm full off now - thank goodness - and have been for a while now - maybe 1 or 2 yrs - think more of a year - and now only taking tegretol retard, which controls my e and although I get se's from it I find that they are manageable and only minor.
I'm 38 years old but very young for my age - and am very proud of it too. I very happy I have found this site and so far, have enjoyed using it alot. Hoping I continue to enjoy using it - think I will.
I used to live in Canada - west coast - BC for 23years - and was diagnosed with having e there. Was born in the UK and went back there in March 1997! And might go back there one day -as I do feel more Canadian then I do British. No offence to any of the British people who use this forum!
Susan
Miss Choccy
