increasingly difficult time coping

[petero]

I have been having an increasingly difficult time coping since my last major seizure in early December
this resulted in my being taken to the ER where the problems began with way too much interaction going on with me, around me...
ever since I've had the feeling that a natural seizure cycle was disrupted
I've felt like I've been in limbo since then
I'm sure people were doing some kinds of tests on me that were of a psychologically invasive nature
and I'm utterly lost
my prior seizures, and one since, had not resulted in this disruption of my state of psychological stability
since this er visit it has been like a freefall waiting for the "thud" to happen, but it never does
I think they tried some sort of strobe light on me
and all of this stuff that went on has been like an incessant presence
I've never felt like this before and it's starting to scare me really
there I'd no "resolution" to "things"
I can't quite describe
but it's just incessant and I can't really put a focal point on it except for this ER trip
has anyone else gotten like this from disruption during a seizure period of some sort?
things do not seem right

 

[Meetz1064]

Have you

talked to your neuro/doctor about this? Quite often during EEGs, lights ARE used as part of the test, but sometimes its the penlights from the EMTs during their exams that can bother you as well.......

 

[elizzza811]

As crazy as it sounds, sometimes I think we should allow seizures to run their course and do their thing, without interference. The purpose of seizures, from what I've been reading, is to correct something metabolically wrong with the brain. And after some seizures, I actually feel better...? Problem is they won't let me drive until the seizures are resolved, so metabolically wrong or not, I'm going to have to 'interfere'.

 

[petero]

considering they induce a seizure with ECT for depression - it seems to reason that stifling or interfering with an epilepsy seizure cycle could have the reverse effect: inducing depression
I'd agree that I feel better, clearer, 'rebooted', de-fragged.. after some periods of what I assume to be seizure periods
especially after pain - but aside from just being pain-free, there's a deeper sense of resolve at times

 

[BigWill]

I agree, Ive always felt better the day after Ive had a seizure. Its like I feel "normal" again. My last episode when I was ridin in the truck with my dad, I think I might have had a partial seizure, and about six hours later I felt the best I have since Ive started having seizures.

 

[CrunchyFrog]

Could it be derealization? It's an alteration in the perception or experience of the external world so that it seems strange or unreal. I can't post links yet, but if you google it there is a wikipedia article on it.
I've had it all the time recently. I think it may be because I'm taking the generic form of Lamictal (Lamotrigine) It's the first time I've been on it and I've only been experiencing it since the change. I feel sometimes like something is about to happen but, it doesn't.... It's a really difficult feeling to describe.