Infantile spasms treatment in infant give parents hope
- Thread starter Heather
- Start date
Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
- Messages
- 781
- Reaction score
- 0
- Points
- 0
treatment of IS
Sabril is the first choice treatment for IS in Holland for many years. In the US it was only approved recently by the FDA. I know many kids who did get controlled on Sabril (but I also know many who didn't.)
The most known side effect is a permanent vision imparment (only view straight forward, not at the sides.)
More information about Sabril as a treatment for IS here
http://www.kidsepilepsy.com/ : see search 'by treatment' and 'by diagnosis'.
ACTH is tried for many kids when Sabril doesn't work.
Ganaloxone is a promising, brand new med, especially developed for IS.
I recomment the IS forum http://infantilespasms.com/forum/
Sabril is the first choice treatment for IS in Holland for many years. In the US it was only approved recently by the FDA. I know many kids who did get controlled on Sabril (but I also know many who didn't.)
The most known side effect is a permanent vision imparment (only view straight forward, not at the sides.)
More information about Sabril as a treatment for IS here
http://www.kidsepilepsy.com/ : see search 'by treatment' and 'by diagnosis'.
ACTH is tried for many kids when Sabril doesn't work.
Ganaloxone is a promising, brand new med, especially developed for IS.
I recomment the IS forum http://infantilespasms.com/forum/
Last edited: