Hi All,
I'm a new member and was excited to find this forum with a simple google search! I am eager to hear about others' experiences with epilepsy, ups and downs, and how they've gone about solving them, as well as share my thoughts and experiences as well.
Let me begin by saying I have uncontrolled idiopathic, primary generalized tonic clonic seizures, along with GAD and panic anxiety disorder. My epileptologist believes there is a strong link between the anxiety and epilepsy, but we haven't been able to identify any specific triggers or patterns.
I currently take 325mg Lamotrigine XR twice daily. I take Clonazepam PRN, usually one dose of 1-1.25mg of the ODT tablets every 3 days.
My first seizure was at the age of 16. I then had two seizures in college, ages 19, and 22. These two seizures happened after drinking too much alcohol and lack of sleep. I then didn't have another seizure until the age of 37. Up until this point I had never taken any AEDs.
So I had my first seizure in 15 years at the age of 37, and started taking Lamotrigine XR. I then had another seizure 6 months later and increased my Lamotrigine up to 500mg daily. Approximately 2 years later I had another seizure, and increased my Lamotrigine again up to 650mg, 2 doses of 325mg daily. One month ago I had another seizure that I think was induced by stress and lack of sleep. Then last Monday, one month since my previous seizure, I had my worst seizure ever. I fell down a flight of 16 stairs, broke my neck and a rib.
My concern is that the seizure frequency is increasing, and at this point I'm not sure what action to take.
I'm a new member and was excited to find this forum with a simple google search! I am eager to hear about others' experiences with epilepsy, ups and downs, and how they've gone about solving them, as well as share my thoughts and experiences as well.
Let me begin by saying I have uncontrolled idiopathic, primary generalized tonic clonic seizures, along with GAD and panic anxiety disorder. My epileptologist believes there is a strong link between the anxiety and epilepsy, but we haven't been able to identify any specific triggers or patterns.
I currently take 325mg Lamotrigine XR twice daily. I take Clonazepam PRN, usually one dose of 1-1.25mg of the ODT tablets every 3 days.
My first seizure was at the age of 16. I then had two seizures in college, ages 19, and 22. These two seizures happened after drinking too much alcohol and lack of sleep. I then didn't have another seizure until the age of 37. Up until this point I had never taken any AEDs.
So I had my first seizure in 15 years at the age of 37, and started taking Lamotrigine XR. I then had another seizure 6 months later and increased my Lamotrigine up to 500mg daily. Approximately 2 years later I had another seizure, and increased my Lamotrigine again up to 650mg, 2 doses of 325mg daily. One month ago I had another seizure that I think was induced by stress and lack of sleep. Then last Monday, one month since my previous seizure, I had my worst seizure ever. I fell down a flight of 16 stairs, broke my neck and a rib.
My concern is that the seizure frequency is increasing, and at this point I'm not sure what action to take.