Hi All,
I started down the seizure road when I was 27. I remember my first which was more like an aura- Deja vu with a bad smell. Weird. I continued to have the Deja vu experiences for quite awhile. I always tried to concentrate on them to figure out what they were. One night, I felt one coming on. I was in bed and decided to ignore it. Next thing I knew; I woke up in an ambulance on the way to the hospital after scaring my family by having a grand mal. Lucky me, I was in bed! Several months of testing (no obvious cause for me to have seizures) and medication selection and me ignoring doctor's orders (I had another seizure on the tennis court), I settled in on 300 mg of tegretol twice a day. Now I take the generic carbatrol. My seizures are completely controlled and have been for 16 years. My original neurologist became a world famous brain expert and I just went to my regular GP for prescription refills until my last physical. My white count has been falling slowly for the last three years which is a side effect of the tegretol/carbatrol. I was referred to a new neurologist who told me I needed to switch meds. She has picked Lamictal xr after dismissing most of the others for one reason or another. I am not looking forward to the switch: no driving and new side effects. Since it has been a long time since I had any tests, I just had an MRI w & w/o contrast and I get to have a sleep deprived EEG with photic stimulation and hyperventilation. Oh joy! Well, that's my story. Happy to meet all of you. :hello::hello:
I started down the seizure road when I was 27. I remember my first which was more like an aura- Deja vu with a bad smell. Weird. I continued to have the Deja vu experiences for quite awhile. I always tried to concentrate on them to figure out what they were. One night, I felt one coming on. I was in bed and decided to ignore it. Next thing I knew; I woke up in an ambulance on the way to the hospital after scaring my family by having a grand mal. Lucky me, I was in bed! Several months of testing (no obvious cause for me to have seizures) and medication selection and me ignoring doctor's orders (I had another seizure on the tennis court), I settled in on 300 mg of tegretol twice a day. Now I take the generic carbatrol. My seizures are completely controlled and have been for 16 years. My original neurologist became a world famous brain expert and I just went to my regular GP for prescription refills until my last physical. My white count has been falling slowly for the last three years which is a side effect of the tegretol/carbatrol. I was referred to a new neurologist who told me I needed to switch meds. She has picked Lamictal xr after dismissing most of the others for one reason or another. I am not looking forward to the switch: no driving and new side effects. Since it has been a long time since I had any tests, I just had an MRI w & w/o contrast and I get to have a sleep deprived EEG with photic stimulation and hyperventilation. Oh joy! Well, that's my story. Happy to meet all of you. :hello::hello: