It's time for Name That Seizure!

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

M

Maidenminx

New
Messages
182
Reaction score
1
Points
0
I've been reading and reading and can't for the life of me figure out what type of seizure fits the following description. I don't see my neurologist again for another 6 weeks and I'm confused and curious.

It starts with a strong urge to lie down. Sitting doesn't help, I'm too weak and dizzy. Once I lire down, I feel very drowsy and often very funny in my stomach. As I lie there my limbs start to feel very heavy and after a while I become aware of the fact that I can't move. The most vocalisation I can create is quiet grunting if I really try (like if someone talks to me). These episodes last anywhere from 1- 5 minutes.

Help.
 
It sounds pretty close to my simple partials! Can you talk though? I can't. Are you aware? I am. Although thinking is hard. Do you remember everything afterwards? Mostly I do. If you don't remember and aren't aware then it's a complex.
At first I can't move then things tense up and twitch a bit though.
I snort and sometimes my mouth makes smacking sounds too for added effect. Along with right sided facial droop afterwards.
Other than that it sounds like me.
The "funny in the stomach" sounds very much like what people with temporal lobe epilepsy describe. I'm more of a frontal lobe kinda gal though.
Do you have a sense of fear too? That often coincides with temporal lobe.
But basically it's a frozen kind of sensation. Or let's put life on pause for a moment while we have a seizure.
I don't mean to make light of it. I have about 5 a day so me and my seizures are good friends. Mine last a minute or under for the seizure itself and then 30-45 min for recovery unless I cluster.
Let's see what other people say though.
 
Interesting. If that is a simple partial, that's a pretty intense one compared to the hallucinatory start and needing to sit down.

I can grunt but can't talk, I am aware though my thinking is dream like and foggy. I remember them fairly clearly. They are scary but not as scary as the auditory hallucinations.

I have been diagnosed with temporal lobe epilepsy, though I haven't had MRI and EEG yet.
 
Yeah with mine you can get me to mumble when I'm recovering. Mine are intense too. I don't feel fear with mine. Although I have started off with deja-vu or jamais vu a handful of times which I know is more temporal and I find those scary, well, just the jamais vu.
I can totally get why the auditory hallucination would be scarier. I'd rather that my brain messes with my physical functioning rather than it's psychic aspects.
Are things changing for you? Do they need to revisit your meds?
 
I'm in the middle of a medication juggle now. I'm weaning off tegretol and going on to lamictal.
One serious problem I'm having at the moment though, I've had a daily marijuana habit on and off for years now which I am trying to wean off which leaves me unsure of what weird mental activity is caused by what.

After an auditory hallucination, which are usually voices or footsteps it will take me ages to convince myself there's not one around that shouldn't be.
 
Ahhhhh! I see! Med changes are sure to mess with your brain waves.
I've heard that some people find marijuana helps them. But I can see how things could get confusing.
I'm a horrible smoker of anything. I just end up coughing and coughing and doing it wrong. Smelling smoke of any kind can be a trigger for me too. Which is a shame, I'm sure a little therapeutic mj would help me mellow out.
But if it is making you question what is real then I can get why you'd want to taper things off. Good luck! Habits of any kind are so hard to break.
I've only been on Keppra and Ativan so I'm no help sharing with lamictal or tegretol experiences.
 
Oh heck. I thought we were going to give it a name like Harold or something.....
 
Oh I do like that. From now on if I have that type of seizure I'll have had a Harold. Oooh I could name my hallucinations too, and the stomach thing, and the light headedness. The tcs will have to have a rare and intense name....
 
I was thinking that "mj" was "Harold" but I like the idea of giving different seizures different names! They sure do feel like something that suddenly pops in for a visit! What would the rare and intense name be for your tonic clonics I wonder...what would make one a female name or male? Too funny.
 
You must log in or register to reply here.
Back
Top Bottom