Hi, I am a 68 year old woman who was diagnosed with a seizure disorder in early December.
I had surgery to correct an aortic aneurysm in June 2017. Because the 5.5 centimeter aneurysm ruptured and because it was high on the arch where the vessels branch to the brain, my operation had to be performed off the heart lung machine, packed in ice with my body temperature lowered to 50 degrees. I was in that state for over 1/2 hour. After making it through that part of the surgery, when it was time to start my heart again, it didn't for a significant period of time. And then it did. Because of all of this I had to work hard to be able to talk again...but I did.
It took until December for the docs to figure out that I had a seizure disorder. I guess the problem with absence seizures is that you are absent at the time. All I knew was that I would miss a few seconds and then have a powerful urge to sleep.
Through trial and error have realized that blue light is my biggest trigger. Have turned everything with a screen in my life to nighttime. Have ordered a blue light screen for the laptop, and blue light blocking glasses but have not received them as of yet.
Had a rather incapacitating seizure in Office Depot a couple of weeks ago. After I came back mentally, I noticed that the cash register (where I was at the time) was next to a bank of computers and monitors for sale. I noticed the huge florescents hanging from the ceiling. I realize that shopping trips were going to be a real issue for me.
Any suggestions? I'm open to anything that isn't hideously expensive and that doesn't involve just hiding in my apartment. I realize that Office Depot has mail order, but I'd like to be able to visit the grocery store without fear. Blue light from computer gets to me within minutes. Florescent lighting has always been a migraine trigger as well, so I guess light sensitivity is no surprise. If I have other triggers I have not identified them as of yet.
Interesting factoid: My cat appears to know when I'm about to have a seizure, comes to me and starts tapping my arm. Took me a little while to realize she was actually doing this...but she is. Good kitty!
Wish we weren't meeting under these circumstances...but nice to meet you all!
I had surgery to correct an aortic aneurysm in June 2017. Because the 5.5 centimeter aneurysm ruptured and because it was high on the arch where the vessels branch to the brain, my operation had to be performed off the heart lung machine, packed in ice with my body temperature lowered to 50 degrees. I was in that state for over 1/2 hour. After making it through that part of the surgery, when it was time to start my heart again, it didn't for a significant period of time. And then it did. Because of all of this I had to work hard to be able to talk again...but I did.
It took until December for the docs to figure out that I had a seizure disorder. I guess the problem with absence seizures is that you are absent at the time. All I knew was that I would miss a few seconds and then have a powerful urge to sleep.
Through trial and error have realized that blue light is my biggest trigger. Have turned everything with a screen in my life to nighttime. Have ordered a blue light screen for the laptop, and blue light blocking glasses but have not received them as of yet.
Had a rather incapacitating seizure in Office Depot a couple of weeks ago. After I came back mentally, I noticed that the cash register (where I was at the time) was next to a bank of computers and monitors for sale. I noticed the huge florescents hanging from the ceiling. I realize that shopping trips were going to be a real issue for me.
Any suggestions? I'm open to anything that isn't hideously expensive and that doesn't involve just hiding in my apartment. I realize that Office Depot has mail order, but I'd like to be able to visit the grocery store without fear. Blue light from computer gets to me within minutes. Florescent lighting has always been a migraine trigger as well, so I guess light sensitivity is no surprise. If I have other triggers I have not identified them as of yet.
Interesting factoid: My cat appears to know when I'm about to have a seizure, comes to me and starts tapping my arm. Took me a little while to realize she was actually doing this...but she is. Good kitty!
Wish we weren't meeting under these circumstances...but nice to meet you all!