Okay so here is how this went down. *mostly from Chad's view, as you all could understand, I was oblivious to all*
So at about 3am Tuesday morning, I got up to pee, came back and went back to bed. About 15mins later, I got up to "pee", came back and went to bed. Then at 3:30 again i woke up to "pee" and came back. Chad Noticed and asked what was wrong. I didnt answer and went to sleep. at 3:45 I got up to use the bathroom again, but this time I turned the corner and bailed to the floor in full convulsions. Luckily Chad heard and came running. This lasted approx 4 and a half minutes.
After the seizure stopped, Chad got things ready to go to the hospital for a possible concussion and head injury, as I smashed my head into the baseboard heater. As he was gathering things, he left me comfortable on the floor, when I had another T/C.
This one lasted about 2 mins. After that one stopped, he scooped me up and off we went to the hospital. *I'll note that I only live 5min drive to the hospital so it was faster to drive than call an ambulance and wait.*
So in the car I was fine, but about 3 minutes after getting me seated at the triage and Chad telling them what happened, and the nurse asking me questions that got me frustrated because i couldnt answer them. *These were Where are you? Do you know what day it is? Can you spell your name? What time is it? etc and my brain wouldnt function to pull the answers out* I had a complex partial and then a few absence seizures.
The quickly admitted me *and by quickly, I mean this poor nurse didnt even have time to print me off the bracelets and morphine alert* I was put into my own little room thing in Emerg, and then got hooked up to a ECG , EEG and had an IV lead put into my arm. *according to chad he asked why it was just the lead and i wasnt given any fluids and they told him its cuz if i had a seizure with that attached to my arm I'd pull it over.*
I had several more absence seizures and minute long T/Cs. They injected me with something that controlled them slightly *made them farther apart* but didnt stop them.
Finally they got me on Valpouric acid Which seemed to do the trick in addition to what they had given me earlier. I was asleep until about 8:30 *during this time I had small seizures in my sleep that kept setting off the ECG alarm for high heart rate. you should have seen the floor! it was covered in print-outs!*
I woke up to breakfast, and reading off the little print out, it said "your meal has been carefully calculated to follow the modified Atkin's Diet!". This I thought was pretty cool.
at about 10:30 I had another complex partial. but they didnt give me anything for this one. I went back to bed. *poor Chad was so tired but couldnt fall asleep in the plastic chair.* I was then woken back up for Lunch and this time the print-out said that it was just clear fluid things *soup, jello, juice and tea*
I stayed awake from this point on though i was really groggy. I kept setting off the heart rate monitor so they eventually made me see a cardiologist too. No more noticable seizures for the rest of the day, except for a few short absence.
During this time until supper they had blood tests done now that it was safe *less likely i would have another T/C* and got my CT scan that i had on thursday rushed. Dinner was good. it said it was calculated for people with diabetes *shepards pie and jello and some crazy good vegetable soup!*
So around 6:00 I got to speak with the neurologist and he told me the following.
1) I have scarring on the front of my brain. *most likely from a bike accident I had at 9yrs old.*
2) I have Juvenile Myoclonic Epilepsy *mostly nocturnal, which is why i was always tired because I was not actually resting* The twitching I had most of my life was actually this. and my space cadet moments.
3) I have a melanolin (spelling) deficiency that i need to get solved. *yay I'm a mini Meetz!*
4) I get to go on meds!!
He expained that Lamicital (lamotrigene) is the best med for someone my age and best at controlling JME unless i end up allergic, in which case i go on Keppra. He said the side effects are low *drowsy and the possible rash* and its the best one and least harmful for a baby should I choose to get pregnant.
He does not know if this med will help with the seizures from the scarring *somewhere around the right temporal lobe* and may need to add another med or up the dosage.
He wants me to be on 400mg Lamictal eventually *it takes so long to ramp up to that much* and hopefully I will be seizure "free"
2 questions---
Why would they try 3 different meal types on me in the hospital as opposed to keeping to one *I do not have diabetes*
When I got my Rx, it said Lamictal, but when the pharacist gave it to me it was Lamotrigene. I asked and he said they were the same thing and left it at that. I know they cant be too similar as they have 2 differnet names. So what is the difference and why not be on the one Rxed?
Welcome to the "team" Rea. Now go get some rest.
If it turns out that you think that it's not working quite so well, ask that a prescription be written for the Lamictal, with the words "Dispense As Written" put on the prescription. That way the pharmacist HAS to give you the name brand med. 
