appsandsuch
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Hey all,
I'm new to posting here, though I've been lurking for quite awhile. I can't tell you how much this board has helped me already in the couple of months that I've been poking around it. Hell, sometimes when I feel an aura/anxiety attack coming on, simple reading through some threads can help me feel more in control and stop things from progressing.
In a semi-large nutshell, I'm 27, have had epilepsy since I was 11, but only recently have really been having trouble with it. Whereas, before, my seizures were just an annoyance - something that happened every so often, were easily recoverable from, and the biggest issue was explaining to those around me - over the past couple of years, pre-ictal and ictal fear has come into the picture, and, most recently, seizures presenting as panic attacks. My staple cocktail of Carbatrol and Dilantin stopped being as effective as it had been for about a decade.
I've recently switched Neurologists, and started testing to see if I'm a candidate for surgery. I'm now on Carbatrol, Klonopin, and a small dose of Zonegran (not a fan, as increasing the dosage made me seize more than ever before,) and, hoping to replace Zonegran with Vimpat, which I just started today. I tried a ton of different AEDs as a child, so I'm running out of options there. Neurofeedback is starting to look interesting as well, as my EEG has always been extremely active (I tend to scare the techs.)
My epilepsy has gone from a small part of me to something that is creeping up to the status of defining me. My fear of having seizures is almost as debilitating as the seizures themselves. But basically, there have been a lot of changes regarding my seizures and treatment thereof, so I've been doing a ton of research...it kind of consumes me sometimes...and this board has been quite helpful for that.
So thank you, and maybe I won't be as silent from here on out
Sarah
I'm new to posting here, though I've been lurking for quite awhile. I can't tell you how much this board has helped me already in the couple of months that I've been poking around it. Hell, sometimes when I feel an aura/anxiety attack coming on, simple reading through some threads can help me feel more in control and stop things from progressing.
In a semi-large nutshell, I'm 27, have had epilepsy since I was 11, but only recently have really been having trouble with it. Whereas, before, my seizures were just an annoyance - something that happened every so often, were easily recoverable from, and the biggest issue was explaining to those around me - over the past couple of years, pre-ictal and ictal fear has come into the picture, and, most recently, seizures presenting as panic attacks. My staple cocktail of Carbatrol and Dilantin stopped being as effective as it had been for about a decade.
I've recently switched Neurologists, and started testing to see if I'm a candidate for surgery. I'm now on Carbatrol, Klonopin, and a small dose of Zonegran (not a fan, as increasing the dosage made me seize more than ever before,) and, hoping to replace Zonegran with Vimpat, which I just started today. I tried a ton of different AEDs as a child, so I'm running out of options there. Neurofeedback is starting to look interesting as well, as my EEG has always been extremely active (I tend to scare the techs.)
My epilepsy has gone from a small part of me to something that is creeping up to the status of defining me. My fear of having seizures is almost as debilitating as the seizures themselves. But basically, there have been a lot of changes regarding my seizures and treatment thereof, so I've been doing a ton of research...it kind of consumes me sometimes...and this board has been quite helpful for that.
So thank you, and maybe I won't be as silent from here on out
Sarah
I used to actually enjoy that there was this piece of me that was somewhat unique, I didn't mind it. Now that it's such a burden, I'd gladly be rid of it and just shave my head and learn a dead language if I felt I needed to be a bit more unique!!