Long term monitored EEG

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!

casey561

New
Messages
6
Reaction score
0
Points
0
So I have my first long term monitored EEG scheduled for Nov. 7th it is supposed to last 5 days. I have heard that either they aren't too bad or terrible. I am always on the move and a workaholic (my boss isn't to happy about me needing time off). I feel like I am going to go crazy sitting in a bed doing nothing for a week. Also I work in supported living for adults with developmental disabilities in a community residence. One of my clients is very attached to all her staff but more so with me.

Basically I need tips on how to survive this week. And I don't know what to do about my client. I have never missed a shift before, every Mon-Thurs for the last 6 months I have been at her house. Do I give her a heads up and if so how much notice? And her disability is purely physical, cognitively she is a fully functioning young lady.
 
Hi casey,
I think it's wonderful how you work with adults with disabilities I would love to do the same type of work as you do. My advice to you is to let your friend know a.s.a.p. and explain why that way the person will be able to understand and know that you will be coming back in a few days. I've found the longer I put things off the harder it is for me to do them.

I had my e.e.g. monitoring for at least 5 days. My Dr. purposely reduced some of my meds and I told my Dr. what foods and beverages triggered seizures so I was given those and I had more seizures quickly and then I was able to get out of the hospital.

You may want to take a book, crossword puzzles, word search puzzles or a deck of cards with you to keep you busy. If you like to write or draw bring some paper and pens and pencils so you can write or draw pictures. I know I wasn't allowed to have a cell phone or use a computer when I was in the hospital having my test done because the frequency of the cell phone and computer could mess the e.e.g. up but that was yrs. ago maybe things have changed now. I wish you the best of luck and May God Bless You!

Sue
 
Hi, casey561;

Regarding your client, ask the hospital now if they are going to allow you to have a cellphone with you, and if this is permitted you can email your client or even phone every so often. If no phone is permitted, then perhaps your client will feel less "abandoned" if you write out goals/projects you would like her to achieve or work on during the time you are away - giving her something to focus on and wanting to accomplish for you.
 
Back
Top Bottom