Medication decisions

[Heavy Kevy]

My surgery was over 2 years ago. It’s been life changing in the best way. I went completely SZ free for 6 months. Since then Ive been having Very mild nocturnal seizures maybe once a month. In comparison to the past. They’ve all been nocturnal and my recovery is very quick as well.
My concern is that the frequency appears to be increasing. I just checked my SZ diary and I’ve had 10 already this year.
I’m sure I could be building a tolerance to any of the medication I’m still taking.
I’m willing to continue with my situation. Rather than changing meds yet. At the same time, I don’t think possibly having 20 (even mild) seizures in a year will be good for me.

I feel better getting that written down, and out of my head.
I hope you’re all having a wonderful day

 

[Porkette]

Hi Heavy Kevy,

Have you ever noticed a pattern in your seizures where you may have more in the summer compared to
the winter. If so it could be the amount of serotonin out there in the summer that is triggering more seizures.
My Epileptologist calls them "seasonal seizures."

Wishing you only the best and May God Bless You,

Sue

 

[Heavy Kevy]

Thanks Sue!
No, haven’t noticed any seasonal changes. I am curious if sudden large temperature change affects me. I will look into serotonin levels
My wife told me I had one at 6:00 am yesterday. I was “smacking my lips”. I felt decent most of the day. Then took a late nap, and screwed up my sleep schedule.
I’ll be taking it easy and trying to stay cool today. It’s blazing hot outside!

 

[Porkette]

Hi Heavy Kevy,

I'm glad you haven't had any seasonal changes triggering seizures but another thing that triggers
seizures for me is a low pressure in the weather. If it's going to rain or snow even two days before the
bad weather hits I will often have a seizure. My Epileptologist told me this happens because the air gets
heavy and in turn that messes with a person's hormones and can trigger seizures for some people.
Wishing you only the best and May God Bless You,

Sue

 

[Sabbo]

Hello. I feel that if there isn't any pattern you're noting, you could be reaching a tolerance level. I hate that part of epilepsy. Even since adding Xcopri, the longest I've been seizure-free is close to 8 months, & THAT was back in 2024.

 

[Bernard]

Do you take your meds in the morning or evening/night? If you take them in the morning, it's possible that changing the timing of the dosage schedule or using extended release versus regular might help maintain a more even blood syrum level of your meds at night.

 

[Heavy Kevy]

I’m taking meds 3 times a day. Thank goodness for the phone alarm. I’d miss a few midday doses without it.