Monday appment went well

[cool1984]

hi all,

I was a little worried about today becouse of the doctors and my mum,

but when i got in there i sat dwon and he said told me about the letter and i said that i made another appment and one never came and i said it was fine,

and he said how am i? i said wel can i expline something to do you,

for about more then a year now, i gone to bed tiryed, and i like got shot out of sleep by i think me shaking my arms and legs then i think with in secends i fall back to sleep, then wake up a little bit later woke up with headach and namal feel tiryed he said do i feel hot, and i said yes, he asked me how many times this has happind i said 10 or more times about 2-4 times a month sence last fabuary

he going to see me in 6months i now going to be vidio myslef when i'm sleep plus writeing a diary

what are the mairn things they need from your dairy?

he did say something about meds, at the momet we not uping them at the momet, but he sending an letter to the GP,

He wents to see what it is going off, if i feel it gets bad again so next month when i'm back at college i go and speak to the gp and see if i can up it i think they say up by 25mg every 2 week becouse i'm still not on 200mg as yet,

so so far today was so happy when i came out that i could get off my cheast what was bothing me,

i hope from now on i will be able to talk to the doctor about my epilepsy, "epilepsy as allways been a trouble bring it up" but it is all ok now, i hope from today it will start to be easy to talk to my mum,

I hope we can get somewhere now,

plus on top of all this when i can get vidio at least on top of my new syptoms we can see if i'm still having nocturanls on top of anything also,

i dont think i missed anything there is one thing but it gone off my mind!!! ????

take care cazzie

 

[RobinN]

That must be a great feeling Cazzie. To be heard, is empowering.
I do hope for your sake that you and your mum can discuss this now, and make some plans for how to improve the situation.

I wish you all the best this year in college.

 

[Meetz1064]

I'm glad

to hear that things went well for you at your appointment today, Cazzie. I know I feel much better when they do for me. I just recently got my mom to finally LISTEN and UNDERSTAND--REALLY UNDERSTAND after 44 years of having E, so I get where you're coming from.

Good luck at school, and please keep in touch. We want to know how you're doing.

 

[Nakamova]

That's great, to get to see a doc, to have him listen to you, to feel like there's attention being paid and progress being made. Awesome.

For the diary, I think the idea is to record whenever you'd had a seizure -- how frequent, how intense. It's also a good idea to note details about your diet/metabolism, sleep, stress -- anything that might potentially be a factor in triggering your seizures.

Best,
Nakamova

 

[RobinN]

Yes, I agree about the diary.
On Rebecca's I use a blank calendar, and I make notes of TOM, any seizure activity, changes to diet, supplements, anything at all out of the ordinary. Even if it doesn't seem to relate, you might start seeing a pattern. For ours it took a couple of years to see the pattern, yet it was easier to point this out to her doctor and get her to listen and relate to what I was saying.