Hello ,
My daughter had her first noticeable seizure at 5 days old . It was non stop
from there and at there worst was having them every hour of every day clustering also..... ACTH Topirimate phenotoin we tried everything..... untill.... we found out Isla has something called ADH it is a sodium problem to do with the renal glands so Isla has been on sodium supplements and has not had a seizure now for 9 weeks:woot: Although the docs were baffled by this side of things ( sodium deficiancy) they say it is not the cause of the seizures but would not be helping ???? Im on tender hooks ... She does not seem to be developing as she should she is 8 mo and still not smiling :dontknow: But very very dopey she has her mads at 10 - 10 and will sleep for most of the day ! Could this be holding her back (the drugs) or have i got to face facts that the seizures are trying to tell me there is something wrong:brain:
My daughter had her first noticeable seizure at 5 days old . It was non stop
from there and at there worst was having them every hour of every day clustering also..... ACTH Topirimate phenotoin we tried everything..... untill.... we found out Isla has something called ADH it is a sodium problem to do with the renal glands so Isla has been on sodium supplements and has not had a seizure now for 9 weeks:woot: Although the docs were baffled by this side of things ( sodium deficiancy) they say it is not the cause of the seizures but would not be helping ???? Im on tender hooks ... She does not seem to be developing as she should she is 8 mo and still not smiling :dontknow: But very very dopey she has her mads at 10 - 10 and will sleep for most of the day ! Could this be holding her back (the drugs) or have i got to face facts that the seizures are trying to tell me there is something wrong:brain: