Rae1889
Veteran
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So, I went and saw my neurologist yesterday. It actually went really really well. Although I think I ticked him off a bit.
So we sat down, he asked how my day was going. We went on about our super cold weather. Then he asked how my absence seizes and such were. *first time he mentioned them as seizures* and then asked if I had anymore "on the ground" ones. That I had to be sarcastic with. My response was "nope, I had the majority of them on the ceiling and a few mid air." he didnt look impressed. I don't know about you guys, but if that actually happened I would be pretty darn impressed.
So we chatted about my EEG results. apparently I had almost accidently fallen asleep right at the beginning where they make you close your eyes and relax. They didnt let me sleep for the test, but i wasnt allowed to fall asleep during it either. Well just as I was almost alseep, they caught a blip. I hadnt realized I was drifting, but I was very relaxed. This blip lasted about 3 seconds.
They caught a second blip during the strobe light. I remember getting a bit of tingles during this part, but figured it was cuz I was tired and nervous about actually seizing. as coloured lights affect me and I wasnt sure if they would start to change. this one lasted about 1 minute. so I think it may have been an aura. but nothing generalized.
I was so sure that I had no activy at all and then there it is. and this seemed to make my neuro pretty excited as it no longer seemed like I was faking. So he scheduled a sleep deprived EEG and is alos looking into getting me a "take-with you" EEG for 72 hours. which would be nice to catch something else.
So I asked what else I could do to help with control and mentioned going gluten free. he was all for it. He has a sensitivity to it, so he knows how to go about this. He unfortunately knew nothing about neurofeedback.
He also is upping my dosage of Lamictal. I am at 100mg currently (50 mg twice daily) and starting today I am at 75mg twice daily. then in ten days i up it to 100 mg twice daily. he wants me to keep adding one pill in teh morning and evening every ten days till our next appointment. which is February 2. Does this seem a little fast?
but other than that...No tonic clonics since my burn one and the one the next morning. one whole week as of tomorrow. this is the second time i went a full week this month. which hasnt happened since I first had one. so I think I am doing really well on these meds, just need to find the right dose. WOO HOO!
So we sat down, he asked how my day was going. We went on about our super cold weather. Then he asked how my absence seizes and such were. *first time he mentioned them as seizures* and then asked if I had anymore "on the ground" ones. That I had to be sarcastic with. My response was "nope, I had the majority of them on the ceiling and a few mid air." he didnt look impressed. I don't know about you guys, but if that actually happened I would be pretty darn impressed.
So we chatted about my EEG results. apparently I had almost accidently fallen asleep right at the beginning where they make you close your eyes and relax. They didnt let me sleep for the test, but i wasnt allowed to fall asleep during it either. Well just as I was almost alseep, they caught a blip. I hadnt realized I was drifting, but I was very relaxed. This blip lasted about 3 seconds.
They caught a second blip during the strobe light. I remember getting a bit of tingles during this part, but figured it was cuz I was tired and nervous about actually seizing. as coloured lights affect me and I wasnt sure if they would start to change. this one lasted about 1 minute. so I think it may have been an aura. but nothing generalized.
I was so sure that I had no activy at all and then there it is. and this seemed to make my neuro pretty excited as it no longer seemed like I was faking. So he scheduled a sleep deprived EEG and is alos looking into getting me a "take-with you" EEG for 72 hours. which would be nice to catch something else.
So I asked what else I could do to help with control and mentioned going gluten free. he was all for it. He has a sensitivity to it, so he knows how to go about this. He unfortunately knew nothing about neurofeedback.
He also is upping my dosage of Lamictal. I am at 100mg currently (50 mg twice daily) and starting today I am at 75mg twice daily. then in ten days i up it to 100 mg twice daily. he wants me to keep adding one pill in teh morning and evening every ten days till our next appointment. which is February 2. Does this seem a little fast?
but other than that...No tonic clonics since my burn one and the one the next morning. one whole week as of tomorrow. this is the second time i went a full week this month. which hasnt happened since I first had one. so I think I am doing really well on these meds, just need to find the right dose. WOO HOO!
fft:
)