My husband

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My husband told me this mornin that I had two seizures Sunday early in the morning and at midnight today. He didn't wanna say it at first but I had to force him to tell me so I can let my neurologist know. I don't know why he gets like that, it's so annoying.
 
Momof5kids,
I get extremely scared when I have a seizure. I shake uncontrollably of fear because I know I'm not in control. That's why my wife has trouble telling me, but she knows she has to. :(
 
My wife has done the same thing and I cannot figure out why.
 
Interesting to read how others are. My wife never tells me (well 90+% of the time) when she knows I had a seizure either but I believe it is because she knows I try to hide it... I don't want anyone to know or see
. Maybe those who have seizures and significant others and family need to sit back and talk about it... maybe.
 
WOW. i can't believe/don't understand what you guys go through. WHAT?!?!?!
epilepsy is OUR disease, seizures risk OUR lives, it's inconsiderate for a stranger to watch and not tell you when you come to................... but a spouse? oh god. even when they know it's wrong or bothers you they keep it to themselves.
WE have to know! keeping track for ourselves is key, especially to the medical system. what, a doc wants to know how your seizures have been and when was the last one...... and you give an answer you're not even aware isn't the truth? stunning. i feel so sorry for you guys. imo that would be a deal breaker in my relationship (even if we were great)... 'this is MY disease, you don't call the shots or keep me out of the loop.'

:hugs: :hugs: :hugs:
 
qtowngirl

I agree with you normally but I have to look at it from my wifes point of view, we had this discussion and yes she understands that I need to know for the neurologist but what I never thought about was the fear she has for me. She seen me doing well on some medication and then change to keppra, this nearly destroyed our relationship. Then there was good control of my seizures and then vimpat was added, the lose of breath was obvious, then the hearth palpitations not alone did I think I was going to have a hearth attack so did she, she has attended a lot of hearth attacks even her own father and my uncle. I know exactly what you are saying and I agree totally but I never seen her side until she explained her fear of me changing medication and what could happen, in her own words "I could loose you", this made me think a lot.
 
well liam this is only re: not telling your spouse that they just had a seizure (not re: meds). keeping it to themselves means you're not aware of the amount of seizures you've had... which your neuro NEEDS to know in order to keep your file up to date, properly. even more important than that is that WE know what's happening/happened to us. sorry friend, there's no excuse.
 
qtowngirl

I know where you are coming from qtowngirl and I agree but it seems and only seems that she is afraid of my seizures changing my meds, its the best I can figure right now.
 
Sometimes we DO want to know and we DON'T want to know if we've had a seizure -- both at the same time Our significant others can pick up on that ambivalence.
 
yea I do ask why he doesn't tell when they happen abd he tells me that he gets real scared and doesn't know what to do. so I watch videos on YouTube with him to show what to do so he won't 've scared but it didn't help none. I don't know what to do. cause I have 3 kids to think bout and I don't want to leave them behind. I can kinda tell when it happened I either have a real bad headache or my body is sore and my balance is way off or I hear some type of noise like clapping abd laughing from my wen I was little. it drives me crazy, and when I feel like that I have yo lay back down and go back to sleep.
 
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