Ophelina
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Hi all,
I was never a part of any support group/forum and I am really happy to join you all today.
I was diagnosed almost 10 years ago, when I was 18, after having a grand mal seizure. I was having all kinds of "weird feelings" since I was 10 or 12, but I thought this was normal.
My EEGs were never normal and, even while I was on meds, I still had some kind of partial seizures (the kind that doctors like to call "dreamy states"). This is why my neuro decided to take me off of Tegretol gradually (we tried lamotrigine, but I was allergic).
This worked fine for 3 years and I've learnt how to live with partial seizures up until now. I was having these episodes 1 to 2 times a month, sometimes going months without them, but now I keep getting them a few times a day.
I am really bad at keeping track and I've never managed to keep a diary for more than a week (shame on me, I know
).
The seizures are also more intense now. I get really dizzy and confused (but I am aware and conscious) and it is much harder to "get back to track" after having them. I used to be the most sensitive in the morning, but now there literally are no rules.
I will be seeing my neuro these days, but right now I am just feeling a bit f***ed up, because it started all over again.
Hope you're all doing well :e:
I was never a part of any support group/forum and I am really happy to join you all today.
I was diagnosed almost 10 years ago, when I was 18, after having a grand mal seizure. I was having all kinds of "weird feelings" since I was 10 or 12, but I thought this was normal.
My EEGs were never normal and, even while I was on meds, I still had some kind of partial seizures (the kind that doctors like to call "dreamy states"). This is why my neuro decided to take me off of Tegretol gradually (we tried lamotrigine, but I was allergic).
This worked fine for 3 years and I've learnt how to live with partial seizures up until now. I was having these episodes 1 to 2 times a month, sometimes going months without them, but now I keep getting them a few times a day.
I am really bad at keeping track and I've never managed to keep a diary for more than a week (shame on me, I know

The seizures are also more intense now. I get really dizzy and confused (but I am aware and conscious) and it is much harder to "get back to track" after having them. I used to be the most sensitive in the morning, but now there literally are no rules.
I will be seeing my neuro these days, but right now I am just feeling a bit f***ed up, because it started all over again.
Hope you're all doing well :e: