My small but very significant victory... SEIZURE FREE!!!!!

[gr33nr0se]

Many of you have read my posts in the past two years and let me just say, it has been quite a journey. It's not over yet, barely began but i am hoping to give hope too all my friends and fellow epileptics out there.

I started off confused and alone, not knowing which way to turn and every week things would get worse. my seizures weren't controlled, my meds made me sick, and school was getting harder and harder to deal with simultaneously. Eventually however, My meds worked, I found the right doctor, and my seizures came less and less frequent.

It has been a year and a half since my last tonic clonic seizure and 6 months since i had even the slightest myoclonic jerk. My neurologist has agreed to clear me for my license in october. I will finally get to be a somewhat normal teenager. Although my journey continues with my lupus, and i will still continue to have epilepsy, I hope that this small but very significant victory means something to someone out there.

It is very possible to go through six medications and five doctors before things start to get better, and it is very likey that you will meet support and friends on the way. This site has shown me that.

I know I have a long way to go and that it's only been a short while, but to me, its a mountain I never thought I would be able to climb.

I start applying to colleges this fall and I am planning, despite the lupus, to live as normal a life as possible.

 

[jyearta]

:clap: That is great news. I'm happy for you.

 

[gr33nr0se]

Thank you!

 

[Nakamova]

Hooray! Hooray! Hooray! So happy for you!

 

[Loopy Lou]

So glad to hear it! I was wondering how you were getting on

:rock:

 

[gr33nr0se]

 

[CQ:)]

That is great news

 

[bandmom]

Very happy for you Hearing that it took 6 medications and 5 doctors does give me hope that my 20-year old daughter might someday be getting her driver's license (she's on medication number 4 and doctor number 3).

 

[Chaz1]

You are inspiration to us all.

Congratulations on year and half seizure free, wonderful news.

The world is your oyster and with your great attitude, we darn lucky you are (one of) the youth of today and that you talk and share your Epilepsy journey.

Continue inspiring and bringing on the hope….u just never know whose life you will put a positive touch on…many of ours that’s for sure! Thank u!

 

[MuayThaiFighter]

I am excited for you! I wish the best for the future, these stories are what keeps everyone together. Incites hope, and that is what the people on this forum shine at. Thank you.

 

[SassySarah]

Your story is true inspiration at this moment as I prepare for hospitalization to get control- I applaud there is hope at the end of what seems a dark tunnel. i watching for the rainbow and lights! Thank you again for remembering us.

Sent from my DROID RAZR using Tapatalk 2

 

[huskymom]

That is such great news! You showed us how sticking with it can turn to good things. I hope you get into the college that you want to. If you need references, I am sure that we would all help you out!!

 

[KarenB]

Congratulations on being seizure free and offering a ray of hope.

Interesting that your lupus and seizures both occurred in same year, as lupus is an autoimmune disease. Just read an article at the "Epilepsy Therapy Project" titled "Epilepsy caused by antibodies" about a study done at Mayo (reported in May issue of "Archives of Neurology") where autoimmune disease can actually cause seizures, and the drugs of choice for this type of epilepsy is immunotherapy treatment (like prednisone type meds) rather than traditional seizure meds. In their small study of 32 patients, 82% reported improvement in seizures, and over half became seizure free after immunotherapy treatment

 

[gr33nr0se]

Congratulations on being seizure free and offering a ray of hope.

Interesting that your lupus and seizures both occurred in same year, as lupus is an autoimmune disease. Just read an article at the "Epilepsy Therapy Project" titled "Epilepsy caused by antibodies" about a study done at Mayo (reported in May issue of "Archives of Neurology") where autoimmune disease can actually cause seizures, and the drugs of choice for this type of epilepsy is immunotherapy treatment (like prednisone type meds) rather than traditional seizure meds. In their small study of 32 patients, 82% reported improvement in seizures, and over half became seizure free after immunotherapy treatment

at first, my doctors believe d they were connected, but the lupus was not active until a year after the epilepsy and the spinal tap came back normal. although, i may start immunotherapy soon anyway. when one thing gets better, the other gets worse. Its worth it though, now i can spend time working on the lupus.




Thank you guys for your support and congratulations. It means alot .

 

[Elsie]

Very happy to read your news. I hope good things continue.

 

[dlynnb]

Wow! I'm new here, this gives me hope there's light at the end of the tunnel for my daughter! I'm sorry you've had to go through all of that. We are hoping to get her driving after she turns 17, if her new meds work. I know not to depend on that though!

 

[qtowngirl]

Way to go girl that is such great news. BIG HIGH-FIVE on the clearance for your license - the best news ever when you want it sooooo bad!!! And yes you are so right on how many doctors and drugs a person has to go through before something works. So happy for you.
And must say you are quite awe-inspiring. Just had a look at your profile and am overwhelmed from start to finish with what has come your way in just 18 years. That is too much for a lifetime but 18!!! Your attitude and positivity towards it all is so awesome, wish more of us could be like that. Love what you said to your brother too... great attitude to share. Take care xx.

 

[bantu_sumit]

Congrats you for this small victory against epileplsy.