I'm new to this site, so I figured that I would share my story with everyone.
My story started when my first son, Caleb, was born on May 14, 2004. He was fine at birth, other than colic, he was fine until he was around 3-4 months old. Then, one day while I was feeding him & he was falling asleep- his upper torso, arms, neck and head began shaking. It lasted about 45-60 seconds, stopped for like 30 seconds and then began again. I brought him right into the pediatrician. I was so scared. We ruled out a fever. We were not sure what to do. He had a thirty minute EEG done, it came out normal. That was the only test that was done. At the time he was also having GI problems (bright blue-green, VERY stinky, watery poop- about 12 times a day from the time he was born), which the doctors thought were more important because of the normal EEG. It turned out that by the time he was 15 months, they went from happening up to 12 times a day- to happening maybe once a week. The last time he had one was around the age of 2. He is now a little over four years old.
I thought that would be the end, but on 1/9/08 a had another little boy, DeWayne aka "De". His is a very healthy baby. No colic. Nurses like a champ. No colds. Never had a fever. The only thing that he ever had was a clogged tear-duct (which fixed itself). Then on May 29th... it happened. It was the same as Caleb use to have. But this time when I went to the doctor- they refered me to a pediatric neurologist. He saw her on May 30th, and June 3rd he had a thirty minute EEG (normal). On July 1st, he will be admitted to the hospital for a 24+ hour EEG. The only test done on him so far is the first EEG. But the doctors seem to be more worried this time. They even said that Caleb is lucky that he did not suffer long term effects from his seizures.
This is what happens during his 'episodes'
-happens after nursing, before falling asleep
-falls into a deep sleep after
-breathes through the whole thing
-upper body, arms, neck & head shake
-unresponsive during
-lasts anywhere from 30-90 seconds
I am just worried about him. I am also worried about Caleb. I do not want this to turn out to be something that could effect them later in life. I want them to be ok. I love my boys (I also love my girls, I have a set of twins that were born on 12/9/02- no seizure activity ever). If anyone wants to chat, give me advise, share their own experiences... I'm open & willing.
Thanks for listening to my family's story!
-Amber
My story started when my first son, Caleb, was born on May 14, 2004. He was fine at birth, other than colic, he was fine until he was around 3-4 months old. Then, one day while I was feeding him & he was falling asleep- his upper torso, arms, neck and head began shaking. It lasted about 45-60 seconds, stopped for like 30 seconds and then began again. I brought him right into the pediatrician. I was so scared. We ruled out a fever. We were not sure what to do. He had a thirty minute EEG done, it came out normal. That was the only test that was done. At the time he was also having GI problems (bright blue-green, VERY stinky, watery poop- about 12 times a day from the time he was born), which the doctors thought were more important because of the normal EEG. It turned out that by the time he was 15 months, they went from happening up to 12 times a day- to happening maybe once a week. The last time he had one was around the age of 2. He is now a little over four years old.
I thought that would be the end, but on 1/9/08 a had another little boy, DeWayne aka "De". His is a very healthy baby. No colic. Nurses like a champ. No colds. Never had a fever. The only thing that he ever had was a clogged tear-duct (which fixed itself). Then on May 29th... it happened. It was the same as Caleb use to have. But this time when I went to the doctor- they refered me to a pediatric neurologist. He saw her on May 30th, and June 3rd he had a thirty minute EEG (normal). On July 1st, he will be admitted to the hospital for a 24+ hour EEG. The only test done on him so far is the first EEG. But the doctors seem to be more worried this time. They even said that Caleb is lucky that he did not suffer long term effects from his seizures.
This is what happens during his 'episodes'
-happens after nursing, before falling asleep
-falls into a deep sleep after
-breathes through the whole thing
-upper body, arms, neck & head shake
-unresponsive during
-lasts anywhere from 30-90 seconds
I am just worried about him. I am also worried about Caleb. I do not want this to turn out to be something that could effect them later in life. I want them to be ok. I love my boys (I also love my girls, I have a set of twins that were born on 12/9/02- no seizure activity ever). If anyone wants to chat, give me advise, share their own experiences... I'm open & willing.
Thanks for listening to my family's story!
-Amber