my story

[KirbyJohn]

Hi my name is kirby
i have had epilepsy since i was 7 when a basketball backboard collapsed on me,
i have had possibly every bad side effect to treatments ranging from weight gain, weight loss, insomnia, depression and i was the 4th person in history to suffer from atonic seizures of my degree, atonic seizures are when the brain shuts down for a split second and reboots for exampled id be walking and boom hit the floor and get straight back up, but these would continue for 2-3 hours every 30 seconds leading into a gran mas siezure. the worst time period of my epileptic experience was last year when i was hospitalized having 1200 seizures a day and they gave me 2 weeks to live.
i went from lieing in my death bed to a full ride basketball scholarship to san frans burkley and life couldnt be better

On a side note i recommend staying away from Keppra and Carbitrol.... but everyones body reacts differently so they might be your solutions
nice to meet everyone

 

[huskymom]

Hello KirbyJohn!!

Sorry for what you had to go through, but you are stronger for it! Congrats on your scholarship! Keppra and Carbatrol work fine for me, but since we are all different, I am glad you found what works for you. :woot:

 

[Bernard]

Hi Kirby, welcome to the forum. :hello:

You got a full athletic scholarship within a year of having 1200 seizures a day? That's pretty impressive. What did you do to get the seizures under control?

 

[Nakamova]

Hi KirbyJohn, welcome!

Best,
Nakamova

 

[KirbyJohn]

my siezures where an allergic reaction to tegratol, which put me in the hospital and because the seizures kept getting worse they kept increasing the dosage making them more frequent and more severe, after switching neurologists after canadians top nerologist took interest she change my meds to divalporates which after a week i was back to the normal me,

also went through a stage of keppras rage, i want to make a post to anyone on keppra to watch for signs of this because i went from the kindest kid youll meet to going on mid night runs because i was suicidal, homicidal, stood at the bed foot of my brothers with kitchen knifes multiple times contemplating cutting their throats, got in constant fights, people became scared of me and everything was horrible slept maybe an hour a night but its all over thank god

 

[Nakamova]

Who was the top neurologist in Canada who helped you out? Just curious, since we have a bunch of Canadian members who might be interested.

 

[KirbyJohn]

i had 2 people working on me Dr Kevin Farrell and Dr. Mary Connolly

Kevin Farrell- stay away from him, im sure hes a good doctor but in my case he was not.... after thousands of seizures and horrible events, the day i was found unconscious under a bridge in vancouver i had a meeting with him and he decided my mother needed therapy for her "Munchausen Proxy" which means she tricks me into believing im sick. he tried to take me off my meds and get me medically emancipated because even though i have been having seizures constantly since i was 7 it was all in my mothers head....

Dr Mary Connolly is amazing, thats all i have to say, shes a top neurologist in canada, works at the childrens hospital in vancouver, at first it was hard to get involved with her but its much worth the effort, since ive had her as a doctor ive only had 4-5 seizures which were all my fault aka, missing pills only sleeping 1 hour a night, she does constant check ups, blood tests, tests my levels and dosage, even calls regularly to see how im doing emotionally and check the emotional side effects.

without her i wouldnt be where i am today

 

[Nakamova]

It's amazing how much difference the right doctor can make.