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My 24 yr old son began having seizures three yrs ago. He has a Neurologist now, has had scans of all sorts, is on medication and still has seizures. The seizures themselves don't seem to be causing as much upheaval as the behavior post seizure. He has Tonic Clonic Seizures which seem to last 2-5 minutes followed by loss of consciousness, then the worse part is the waking up/coming to that usually lasts 10-30 minutes during which he flails around like a zombie, cannot communicate, is totally out of control, can trash a room quicker than 10 happy Labradors knocking everything off tables and shelves with their tails. This is all followed by me having PTSD over the whole incident and feeling completely helpless. Do others have these same experiences? Does he need a different doctor? Is he ever going to be able to live alone or do I need to accept this as my "new" way of life? I'm approaching retirement and can't imagine him having to always live with me and not being able to work and have a life due to these seizures. I need someone to talk to.