Hello PrPrinn,
I know exactly how you are feeling. I've been with my boyfriend now for just over 5 years. He is 30. He started having seizures about a year after we started dating and he was 25. Everything that you've said, I have felt. The worry, the fear, and just having to see him go through such an awful experience did cost me a bit of sleep. He had them while he was awake, asleep, working, DRIVING! When he first started having them, I would call him numerous times a day to just check up on him, but it got to the point where I was more of a "motherly" type than the girlfriend I was supposed to be; coming off as nagging instead of caring. His argument would be, "I'm not a child!!" My argument was, "you've never SEEN a seizure, you don't know what happens!" After visiting many forums and learning about the disorder, I realized that my 'nagging' at him, was only causing him to be more stressed out, which in turn could have been causing him more seizures. If I wanted to be with him (which was a decision I had to make, and it wasn't an easy one despite my love for him) I had to learn how to be caring, considerate, and most of all, to work WITH him, not against him, and if that meant I had to keep my worries and fears to myself, then so be it! That's what the forums are for afterall!
It is life-changing, yes, but it doesn't mean life has to END. But everyone here who has said, "learn about the disorder" is completely correct. We fear things that we don't know, and if you learn about this, it will help you, undoubtedly. Having said that, I still worry about him while I'm at work and he is at home (he hasn't worked for 3 years because he was having seizures at work, and as a mechanic, it just wasn't safe), and when he takes a deep breath in his sleep, I wake up in "ready" position. But I don't let him know that. He just knows that if I call him and he misses my call, to call me back as soon as he can so I don't think he's fallen and can't get up. 
I have seen him have many many many seizures, and honestly, it doesn't get any easier to witness. I think, in part, it is because I know that there is nothing I can do for him during that time. But girl, learn all you can. I wouldn't wish this disorder on my worst of enemies, but a wonderful man fell into my lap with it. If you had told me when I was 18 that I would be caring for the love of my life at age 24, I would have laughed in your face. People ask me all the time how I can deal with something so serious while I am still just a kid myself, and the answer is always LOVE. I love him and I will do anything that I can to help him. It's very hard. It's a constant struggle in more ways than one. But, you CAN be happy...it's just a matter of how you look at it and how you deal with it.
I know exactly how you are feeling. I've been with my boyfriend now for just over 5 years. He is 30. He started having seizures about a year after we started dating and he was 25. Everything that you've said, I have felt. The worry, the fear, and just having to see him go through such an awful experience did cost me a bit of sleep. He had them while he was awake, asleep, working, DRIVING! When he first started having them, I would call him numerous times a day to just check up on him, but it got to the point where I was more of a "motherly" type than the girlfriend I was supposed to be; coming off as nagging instead of caring. His argument would be, "I'm not a child!!" My argument was, "you've never SEEN a seizure, you don't know what happens!" After visiting many forums and learning about the disorder, I realized that my 'nagging' at him, was only causing him to be more stressed out, which in turn could have been causing him more seizures. If I wanted to be with him (which was a decision I had to make, and it wasn't an easy one despite my love for him) I had to learn how to be caring, considerate, and most of all, to work WITH him, not against him, and if that meant I had to keep my worries and fears to myself, then so be it! That's what the forums are for afterall!
It is life-changing, yes, but it doesn't mean life has to END. But everyone here who has said, "learn about the disorder" is completely correct. We fear things that we don't know, and if you learn about this, it will help you, undoubtedly. Having said that, I still worry about him while I'm at work and he is at home (he hasn't worked for 3 years because he was having seizures at work, and as a mechanic, it just wasn't safe), and when he takes a deep breath in his sleep, I wake up in "ready" position. But I don't let him know that. He just knows that if I call him and he misses my call, to call me back as soon as he can so I don't think he's fallen and can't get up. I have seen him have many many many seizures, and honestly, it doesn't get any easier to witness. I think, in part, it is because I know that there is nothing I can do for him during that time. But girl, learn all you can. I wouldn't wish this disorder on my worst of enemies, but a wonderful man fell into my lap with it. If you had told me when I was 18 that I would be caring for the love of my life at age 24, I would have laughed in your face. People ask me all the time how I can deal with something so serious while I am still just a kid myself, and the answer is always LOVE. I love him and I will do anything that I can to help him. It's very hard. It's a constant struggle in more ways than one. But, you CAN be happy...it's just a matter of how you look at it and how you deal with it.
