Hello all.
After scouring the internet for information and researching whenever I can, I stumbled on to this site. I'm actually speaking for my wife, who two Saturdays ago, had three seizures in a single day.
She's never had seizures before and I'll try to be brief as possible.
Start:
She was downstairs in the kitchen doing dishes after lunch that Saturday afternoon, I was upstairs. She walks in to the room I am in and looks completely wasted (like she had a hangover). She had vomit all over her face and her clothes. She looked like she wasn't 100% aware of what's going on and half responsive to my questions and reactions. About 10 minutes later she seemed a bit more responsive and let me know she went blurry all of the sudden, threw up and collapsed on the kitchen floor.
We assumed she got sick because she's been under tremendous stress as of late.
That night, we were talking in bed and in the middle of her sentence, she suddenly stopped. I looked over and her mouth was wide open, her hands were curling up and her body started stiffening. At this point, I'm freaking out and yelling her name to ask her what's wrong. She started to convulse and vomit. This is when I knew she was having a seizure.
911 was called and she was taken to the hospital ER. When I got there, she was on her way to going in to the trauma room. She looked like she stayed up for 10 days straight when I saw her. Extremely lethargic and sick. I asked her some questions and tried to see if she was responding at all. She sees me but doesn't talk. SHe looked like she had no idea where she was and confused.
Right around then, she started another seizure. Hospital gave her a medication that supposedly stops the seizure; I forget the name.
Hospital:
ER monitored her for a few hours, took an CT scan and said that she would need to be admitted to the hospital.
She was monitored at the hospital for another 3 days. They ran MRI, CT Scan, and EEG, all apparently came back negative. Her hospital doctor and neurologist put her on dilantin (and levaquin for her urine infection) during those 3 days and she was pretty much 99% bed ridden and sleeping most of the time. She couldn't get up and walk around as when she was awake, she was dizzy and had headaches all the time. Doctor and neurologist mentioned its likely the sideeffects of dilantin.
The night before going home, she was more awake than usual but started to show some different signs. She seemed a bit more paranoid than usual. She also mentioned she started having numbness on the upper left part of her lip. The doctor told her it was likely the after effects of the seizures she had. Her paranoia was very vague at this point and we didn't think much of it.
Back at home:
She works part time (full time student), but her work allowed her to have the whole week off. She was prescribed a month worth of dilantin to be taken once a day before she goes to bed (3 pills, 300mg total).
She has not gotten better. She didn't have seizures coming home but her paranoia increased, the numbness on the upper left part of her lips doesn't stop and she eventually started involuntarily twitching her left thumb. THe thumb twitching is on and off. Her primary doctor refers her to a neuro but thats not for another 2 weeks. Primary also mentions that all these things shes experiencing are likely the side effects of dilantin. She also has extremely hard time sleeping during the night.
Scary parts:
My wife and I currently live cities apart. I live where we would normally live because of work, she lives in a different city (not a easy commute distance from me) because she's finishing up nursing school. I had to return this weekend because of work. Her mother and aunt would be taking care of her. All the scary parts from here on, I wasn't there witnessing directly but some parts are.
1. This past Monday, I get a call first thing in the morning from my wife with a highly paranoid voice saying she misses me and want to just drop everything (school, work, etc) and come home. I calm her down and that was the end of that till we talk again after work.
Shortly after work, I get a call from her in a very upbeat voice (almost excessive) saying she had an out of body experience and she feels cured.
This is where it gets a bit scary.
She mentioned that while she was in bed, she locked up, her feet and hand were in the air and she felt someone massaging her all over her body. She heard music in her head and felt like someone was talking to her. She wasn't convulsing and she was fully aware of everything going on. She felt that her body was being turned left and right across the bed. Normally, I'd assume that this could've been all in her head but her mother was there who witnessed this at all and both of their accounts match up.
Her twitchings were gone, her headaches were gone, etc etc. She's normally a pretty upbeat person but her demeanor over the phone sounded highly excessive even for her when she was explaining all this to me.
2. Yesterday morning I get a call from her again in the same upbeat voice saying she misses me and asks me the address of her workplace. I was confused on why she'd ask me that all of the sudden. She's talking fast, and in a very random order of conversation. She then says "I was hospitalized for 3 days?" I'm even more dumbfounded and I ask her if she remembers it and she didn't. I'm pretty much disturbed and scared at this point.
She texted me that she took a walk around the block with her mother so I figured she's trying to make up for all the time she's been in bed.
Lo and behold, that night, her mother and aunt calls me frantically saying they found her in the kitchen not normal. Her jaws were open and she could not close them for a while. Her body was also stiffened. It took about 5 minutes or so for her to be able to close her jaws and 30 minutes or so for her to go back upstairs to her bed and I've been told she was unable to speak for a while. When she was able, wife called me back and this time she sounded normal. She sounded tired and sick but this actually sounded how my wife normally sounds (sans the tired tone). Again, she was able to recount everything she experienced from start to finish. She doesn't think these were seizures.
3. Her aunt has let me know that she has not been mentally normal ever since I left. Her paranoia keeps getting worse, her finger twitchings came back and her lip numbness came back as well. The biggest thing is that she has memory loss (remember, she couldnt remember that she was hospitalized... but that came back later), and extreme mood swings. She never, ever throws a fit (like a child) or yells at the top of her lungs in frustration. She was doing this to her aunt and mother in the middle of the night.
4. She called me during work today, said she woke up and felt the need to call me to drop everything and come to her right at that moment. Once again, she never does this. I can tell in her voice that she's not in her right mind. And for the first time ever, I witnessed her yelling at me in frustration (best I can describe is like a 4 year old yelling at the top of his lungs because hes not getting something). I remained calm and spoke to her patiently like I would to a child. I asked her name, I asked her my name, her birthday, my birthday, etc. She can answer all this correctly... but her demeanor is like a child.
So...
I'm at a loss. Is this the effects of dilantin? Levaquin? Are the seizures shes had two saturdays ago causing this?
It's coming to a point where we need to seriously think about doing something quick. She starts her new semester Monday and it's her last semester. She worked her ass off for years getting in to nursing school and her not being able to attend this semester jeopardizes all that work.
If she has another one of those 'out of body' or collapsed and locked body type of things where she's conscious but can't do anything... should we still take her to the ER?
I'm not understanding why she's so messed up right now. MRIs, CTs, EEG, all are negative... no matter how much she rests and take meds, her physical and mental state is deteriorating.
Please help, I need advice. Sorry for the long read.
After scouring the internet for information and researching whenever I can, I stumbled on to this site. I'm actually speaking for my wife, who two Saturdays ago, had three seizures in a single day.
She's never had seizures before and I'll try to be brief as possible.
Start:
She was downstairs in the kitchen doing dishes after lunch that Saturday afternoon, I was upstairs. She walks in to the room I am in and looks completely wasted (like she had a hangover). She had vomit all over her face and her clothes. She looked like she wasn't 100% aware of what's going on and half responsive to my questions and reactions. About 10 minutes later she seemed a bit more responsive and let me know she went blurry all of the sudden, threw up and collapsed on the kitchen floor.
We assumed she got sick because she's been under tremendous stress as of late.
That night, we were talking in bed and in the middle of her sentence, she suddenly stopped. I looked over and her mouth was wide open, her hands were curling up and her body started stiffening. At this point, I'm freaking out and yelling her name to ask her what's wrong. She started to convulse and vomit. This is when I knew she was having a seizure.
911 was called and she was taken to the hospital ER. When I got there, she was on her way to going in to the trauma room. She looked like she stayed up for 10 days straight when I saw her. Extremely lethargic and sick. I asked her some questions and tried to see if she was responding at all. She sees me but doesn't talk. SHe looked like she had no idea where she was and confused.
Right around then, she started another seizure. Hospital gave her a medication that supposedly stops the seizure; I forget the name.
Hospital:
ER monitored her for a few hours, took an CT scan and said that she would need to be admitted to the hospital.
She was monitored at the hospital for another 3 days. They ran MRI, CT Scan, and EEG, all apparently came back negative. Her hospital doctor and neurologist put her on dilantin (and levaquin for her urine infection) during those 3 days and she was pretty much 99% bed ridden and sleeping most of the time. She couldn't get up and walk around as when she was awake, she was dizzy and had headaches all the time. Doctor and neurologist mentioned its likely the sideeffects of dilantin.
The night before going home, she was more awake than usual but started to show some different signs. She seemed a bit more paranoid than usual. She also mentioned she started having numbness on the upper left part of her lip. The doctor told her it was likely the after effects of the seizures she had. Her paranoia was very vague at this point and we didn't think much of it.
Back at home:
She works part time (full time student), but her work allowed her to have the whole week off. She was prescribed a month worth of dilantin to be taken once a day before she goes to bed (3 pills, 300mg total).
She has not gotten better. She didn't have seizures coming home but her paranoia increased, the numbness on the upper left part of her lips doesn't stop and she eventually started involuntarily twitching her left thumb. THe thumb twitching is on and off. Her primary doctor refers her to a neuro but thats not for another 2 weeks. Primary also mentions that all these things shes experiencing are likely the side effects of dilantin. She also has extremely hard time sleeping during the night.
Scary parts:
My wife and I currently live cities apart. I live where we would normally live because of work, she lives in a different city (not a easy commute distance from me) because she's finishing up nursing school. I had to return this weekend because of work. Her mother and aunt would be taking care of her. All the scary parts from here on, I wasn't there witnessing directly but some parts are.
1. This past Monday, I get a call first thing in the morning from my wife with a highly paranoid voice saying she misses me and want to just drop everything (school, work, etc) and come home. I calm her down and that was the end of that till we talk again after work.
Shortly after work, I get a call from her in a very upbeat voice (almost excessive) saying she had an out of body experience and she feels cured.
This is where it gets a bit scary.
She mentioned that while she was in bed, she locked up, her feet and hand were in the air and she felt someone massaging her all over her body. She heard music in her head and felt like someone was talking to her. She wasn't convulsing and she was fully aware of everything going on. She felt that her body was being turned left and right across the bed. Normally, I'd assume that this could've been all in her head but her mother was there who witnessed this at all and both of their accounts match up.
Her twitchings were gone, her headaches were gone, etc etc. She's normally a pretty upbeat person but her demeanor over the phone sounded highly excessive even for her when she was explaining all this to me.
2. Yesterday morning I get a call from her again in the same upbeat voice saying she misses me and asks me the address of her workplace. I was confused on why she'd ask me that all of the sudden. She's talking fast, and in a very random order of conversation. She then says "I was hospitalized for 3 days?" I'm even more dumbfounded and I ask her if she remembers it and she didn't. I'm pretty much disturbed and scared at this point.
She texted me that she took a walk around the block with her mother so I figured she's trying to make up for all the time she's been in bed.
Lo and behold, that night, her mother and aunt calls me frantically saying they found her in the kitchen not normal. Her jaws were open and she could not close them for a while. Her body was also stiffened. It took about 5 minutes or so for her to be able to close her jaws and 30 minutes or so for her to go back upstairs to her bed and I've been told she was unable to speak for a while. When she was able, wife called me back and this time she sounded normal. She sounded tired and sick but this actually sounded how my wife normally sounds (sans the tired tone). Again, she was able to recount everything she experienced from start to finish. She doesn't think these were seizures.
3. Her aunt has let me know that she has not been mentally normal ever since I left. Her paranoia keeps getting worse, her finger twitchings came back and her lip numbness came back as well. The biggest thing is that she has memory loss (remember, she couldnt remember that she was hospitalized... but that came back later), and extreme mood swings. She never, ever throws a fit (like a child) or yells at the top of her lungs in frustration. She was doing this to her aunt and mother in the middle of the night.
4. She called me during work today, said she woke up and felt the need to call me to drop everything and come to her right at that moment. Once again, she never does this. I can tell in her voice that she's not in her right mind. And for the first time ever, I witnessed her yelling at me in frustration (best I can describe is like a 4 year old yelling at the top of his lungs because hes not getting something). I remained calm and spoke to her patiently like I would to a child. I asked her name, I asked her my name, her birthday, my birthday, etc. She can answer all this correctly... but her demeanor is like a child.
So...
I'm at a loss. Is this the effects of dilantin? Levaquin? Are the seizures shes had two saturdays ago causing this?
It's coming to a point where we need to seriously think about doing something quick. She starts her new semester Monday and it's her last semester. She worked her ass off for years getting in to nursing school and her not being able to attend this semester jeopardizes all that work.
If she has another one of those 'out of body' or collapsed and locked body type of things where she's conscious but can't do anything... should we still take her to the ER?
I'm not understanding why she's so messed up right now. MRIs, CTs, EEG, all are negative... no matter how much she rests and take meds, her physical and mental state is deteriorating.
Please help, I need advice. Sorry for the long read.