Truly, I wish I had found this site months, even years ago. I'm sure it would have been a huge help. I'm still as much in the dark about seizures as I was when I woke up in an ambulance in 1991 and was told I'd had one. I thought I was being told I'd had a heart attack, so when I was put in the tube for an MRI I tried to tell the staff they were putting me in the wrong way!
The trail of MRIs ever since has never revealed why I have them, what sort they are, or when they decide to happen. They have their own rules, it seems.
I had a few years of "remission" but then they recurred after my son's death in '04 so I feel, strongly, that stress plays a large part.
Additionally, I have never broken a bone following a fall but, from the age of four to my adult years, always managed to land on my head and believe that is significant, also.
One major factor which seems to be overlooked in treating epilepsy is a comparison between prescriptions. The first I was given, Dilantin, gave me the tizzies, and Keppra kept me in a fog, doing nothing at all to help the convulsing.
The last week of 2008 I was referred to another neurologist who described a few characteristics and I asked her to put me on Topomax. Within a week-and-a half of her recommended "takeover" method from Keppra it was as if a light went over in my head. I knew it was working! I am now taking only Topomax and I am feeling something like my old energy (allowing for some missing years!)
The subject of epilepsy has had me guessing ever since it entered my life without permission. To my knowledge there is no family history, although history recounts many well known figures who left good legacies.
Biblical references speak of demon possession. I am sure it must have looked like it, although I have never actually seen mine, or anyone else's (my husband is my witness but I have asked him not to describe them!) Just a few close friends have been around to see me in action. Thank God they are in the nursing field.
So why am I now writing at length to other epileptics? For a number of reasons --first to say, "Thank you" for this opportunity, even though it has been difficult to write this far ( I made quite a few starts). Secondly, I was dealt a double whammy when a dear, vivacious, loving friend, an RN who cared deeply for America's vets., died of her first seizure a week ago.There was the underlying cause of an aneurysm, (to be confirmed by an autopsy) but I still want to scream out loud. It seems so ironic compared with my countless episodes. I don't believe God is spiteful, there is some meaning to both death and life, but when I heard the news I thought there had been a mistake...I should have gone
I've been assured there is no cure for epilepsy, only relief. I have never really believed that. When I get over my grief I will return to my hope.
God Bless!
The trail of MRIs ever since has never revealed why I have them, what sort they are, or when they decide to happen. They have their own rules, it seems.
I had a few years of "remission" but then they recurred after my son's death in '04 so I feel, strongly, that stress plays a large part.
Additionally, I have never broken a bone following a fall but, from the age of four to my adult years, always managed to land on my head and believe that is significant, also.
One major factor which seems to be overlooked in treating epilepsy is a comparison between prescriptions. The first I was given, Dilantin, gave me the tizzies, and Keppra kept me in a fog, doing nothing at all to help the convulsing.
The last week of 2008 I was referred to another neurologist who described a few characteristics and I asked her to put me on Topomax. Within a week-and-a half of her recommended "takeover" method from Keppra it was as if a light went over in my head. I knew it was working! I am now taking only Topomax and I am feeling something like my old energy (allowing for some missing years!)
The subject of epilepsy has had me guessing ever since it entered my life without permission. To my knowledge there is no family history, although history recounts many well known figures who left good legacies.
Biblical references speak of demon possession. I am sure it must have looked like it, although I have never actually seen mine, or anyone else's (my husband is my witness but I have asked him not to describe them!) Just a few close friends have been around to see me in action. Thank God they are in the nursing field.
So why am I now writing at length to other epileptics? For a number of reasons --first to say, "Thank you" for this opportunity, even though it has been difficult to write this far ( I made quite a few starts). Secondly, I was dealt a double whammy when a dear, vivacious, loving friend, an RN who cared deeply for America's vets., died of her first seizure a week ago.There was the underlying cause of an aneurysm, (to be confirmed by an autopsy) but I still want to scream out loud. It seems so ironic compared with my countless episodes. I don't believe God is spiteful, there is some meaning to both death and life, but when I heard the news I thought there had been a mistake...I should have gone
I've been assured there is no cure for epilepsy, only relief. I have never really believed that. When I get over my grief I will return to my hope.
God Bless!
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