RunningGirl85
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I haven't been active here lately because the past few weeks have been super busy, but I guess I would let everyone know how I'm doing. First, I did my marathon on Sunday for the epilepsy therapy project. It was great - and the dinner was great. It was so cool to get to talk to other people dealing with the same thing as me. What a great group of people. It was also kind of cool passing people with the Epilepsy Therapy Project slogan and logo on the back 
Now I can hardly walk because my foot hurts so much, but I still don't regret the marathon (besides, you're supposed to take a break after a marathon anyway!)
Next is the not-so-good news. Went to see the neurologist yesterday, and he's concerned that I'm still having about 3-5 short auras during the week (I told him they usually come in clusters). Now he's wondering if some of them aren't seizure activity since I said I get anxious, but I also get the deja vu, so he's thinking some of it might just be anxiety. I guess anxious wasn't a good way of explaining it to him... more like my heart rate increases after the deja vu then I get the sweaty palms/heart rate increase, and it lasts for a short period of time and goes away. The past week or so has been especially active (even when I was on the phone with my nurse case manager yesterday I started getting a partial). Probably as a result of travelling between here and Germany, and then three days after I get back, I went to run the marathon (though I was getting partials in Germany too).
Anyway, my neurologist wants to do a 3-day ambulatory EEG to make sure it is seizure activity before messing with my medications. I said knowing my luck, I won't have anything during those few days, but he says if I'm still having 3-5 auras a week, that there is probably still some activity going on. Anyway, because I'm still having partials, he wants to wait until after the EEG to allow me to drive
So looks like that won't be until at least January when I have my follow up. Oh well, I guess I have gotten used to not driving at this point anyway... Except living in upstate NY in the winter, I would like to be able to drive. Oh well - safety first!
Now I can hardly walk because my foot hurts so much, but I still don't regret the marathon (besides, you're supposed to take a break after a marathon anyway!)Next is the not-so-good news. Went to see the neurologist yesterday, and he's concerned that I'm still having about 3-5 short auras during the week (I told him they usually come in clusters). Now he's wondering if some of them aren't seizure activity since I said I get anxious, but I also get the deja vu, so he's thinking some of it might just be anxiety. I guess anxious wasn't a good way of explaining it to him... more like my heart rate increases after the deja vu then I get the sweaty palms/heart rate increase, and it lasts for a short period of time and goes away. The past week or so has been especially active (even when I was on the phone with my nurse case manager yesterday I started getting a partial). Probably as a result of travelling between here and Germany, and then three days after I get back, I went to run the marathon (though I was getting partials in Germany too).
Anyway, my neurologist wants to do a 3-day ambulatory EEG to make sure it is seizure activity before messing with my medications. I said knowing my luck, I won't have anything during those few days, but he says if I'm still having 3-5 auras a week, that there is probably still some activity going on. Anyway, because I'm still having partials, he wants to wait until after the EEG to allow me to drive
So looks like that won't be until at least January when I have my follow up. Oh well, I guess I have gotten used to not driving at this point anyway... Except living in upstate NY in the winter, I would like to be able to drive. Oh well - safety first!
