Neurologist Fault ?

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I can only guess the term "Half-Life" refers to the overlapping protection of said drug, Keppra. Maybe that explains why if i miss my dosage time by even 30mins its seizure time Lol ! I literary have to take my meds right on time every time or im in for it !
 
Hi Ron,

The strobe test works (for some) because it's based on pulses of light at certain frequencies, not because the light is so bright. The light from welding is probably quite regular, not pulsing, so it won't usually set you off into a seizure.

Myself, I've never seized because of a light test, but I did seize once at a hockey game. After a goal, the lights in the arena were switched off and then on--apparently at the right frequency. After a second goal (with the lights going off and then on), I went into seizure for 20 minutes of regulation time.
 
I read somewhere about a guy who had a tonic clonic and didn't fully come out of it for 2 days. Woke up 2 days after on a park bench on the other side of town and had no recollection of what he did! Makes me feel lucky my post ictal is only about 10 - 20 minutes.
 
I'm very lucky then, mine last 3min max, but i feel like a train hit me ! As i said eailer though, i always push through the "Twilight Zone" feeling, i refuse to let it whoop me.
 
Too Many Possibilities To Blame Just One

Ron,
I have done a lot of welding during my life and I know that seeing the light that is emitted during welding is one of the brightest that you will ever see.
One big possibility for your seizures could be that the location in your brain that is causing your seizures is located so deep within your brain that nothing had ever reached that deeply into your brain to trigger a seizure before.
Like so many people have said, a human body is constantly undergoing changes. This could have very well happened because your body and brain had changed just enough to be set off by the strobe lights like someone else said.
I was diagnosed in 1966 and the knowledge they had about E was so small compared to today. There are many more cases found today because of the growing amount of knowledge about the brain and it's functions. This knowledge still needs to grow by a huge amount before anyone can be satisfied.
You say that drinking 'expresso' helps bring you out of your foggy time after a seizure. Caffeine has been proven to be something to stay away from just like alcohol for a person w/E.
The amount of time that you have had grand mal seizures is not long enough to say that this is the way it is going to be forever. With the changes that can occur w/E you have to be ready for almost any kind of change whether it is positive or negative.
There have been people who suddenly start having seizures and continue for a while only to stop having seizures just as suddenly as they began.
You have to realize that what the neurologist did was something that they have probably done many times before so you can't hold them responsible. If you were to make the doctors who work with people w/E stop using the strobe lights, doing this could very well prevent those doctors from diagnosing many other people. Because of this it has to be taken into the determination that stopping the strobe test could definitely cause a lot more problems than using the strobe can.
Many times it takes a person a considerable time to look at every aspect of their situation and get a complete understanding of what has or is happening. Doing this can be very helpful in calming a person down over something that has happened to them instead of jumping to a conclusion too quickly w/o having all of the facts. :ponder:

acshuman
 
CrunchyFrog said:
I read somewhere about a guy who had a tonic clonic and didn't fully come out of it for 2 days. Woke up 2 days after on a park bench on the other side of town and had no recollection of what he did! Makes me feel lucky my post ictal is only about 10 - 20 minutes.
Click to expand...

That's just sad. Wouldn't the cops get involved? Sleeping on park benches is usually prohibited. It's not like he was alone in his apartment. :eek:

My post-ictal state is also a few days long. Scary stuff.
 
HAPPY NEW YEAR !!!!
I forgot to ask this yesterday, has anyone here ever developed a tick before a seizure ? I sometimes have a tick that make me crank my head to the right several times and i know im doing it but can't pull myself out of it like a bad dream. The last one i had was watching Dallas mop up the Lions (GO DALLAS)..:) I was jumping up and down, screaming then all of a sudden my head twisted to the right several times. After it stopped i had a bad headache then 30min later i seizured.
 
Thanks for the link, it's a very strange feeling. Like yelling for help in a dream but nothing comes out.
 
Ron - nice to meet you, and Happy New Year! I'm sorry to hear of the issues you're getting. I get myoclonic jerks, too - sometimes my neck to the right, many times my right arm, or leg.

As to the strobe test - I'm going to go with the rest of the gang.

I will commiserate with you on the effect epilepsy can have. I had tonic clonics all my childhood, went into a looooong remission, and then different seizure types came back with a vengeance. Reason? Unknown. The brain likes to keep us on our toes! ;-)

One thing though (and yes, I know, I sound all preachy and stuff), but PLEASE if you do have the opportunity to sleep after you seize, please do, as it rebalances your brain. It'll help. The caffeine'll make it harder.

Anyway, it's nice to meet you. The members of this board are great, and they'll pretty much help you with most things!
 
Hi Spider, pleasure is all mine. Your right, ive read sleeping is a good way to "Reboot" your brain. My concerns with that is ive read where it is not uncommon for people to sleep a whole day away & sometimes longer ! Man, that's a waste of time & sometimes after a seizure i don't have 8-10hrs to give up. I've had seizures at 3am & have to be at work 6am so i really didn't have a choice. My supervisor even thought I'd had one to many the night before (I NEVER have a drop during the week) & wanted to send me home until i told him about my new found "Monkey on my back) seizures. I have slept some after a seizure before & felt even worse, aching stiff muscles, bad headache Ect...
 
I pray for sleep it leaves me with migraine for me that infinmly worse thing.i pray for sleep if going through dappled light etc
is it possible you can get disability card or what ever you have in States be allowed that few extra hours.
if I in vicinity of wealder thankfully very rare I have to walk the other way.There is that condition wealders arc do you think that anything to do with it
 
Hi Seagull, my employer now knows of my condition & has no problem working with me on recovery time & in fact encourages it. I'm the one that is reluctant to do so.
 
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