new and have N.E.A.D

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HUGS dear Aimee

Oh hon this is so hard and you already have been through so much.

You said you did have a video EEG? In a hospital??

After they are completely done evaluating you..ask if your therapist could refer you to someone CERTIFIED in a EMDR therapy. That is Eye Movement Desensitization Reprocessing.

Many folks with PTDS have a chemical imbalance due to the brain unable to completely process the trauma. Your autonomic system went into action when you were traumatized (fight or flight mechanism) so that the physical/emotional memory is stuck unable to allow the brain to shut off that "fight or flight" automatic system. So you brain acts like the trauma is still happening chemically. Its not a hard therapy but you need someone who is truly trained and certified in this EMDR. It helps many folks alot.

Psychiatrists and therapists will continue to keep trying meds which is ok..but may not be enough for you.

Google EMRD there is a YouTube video of this as well.

Good luck..and let me know how you're doing ok?

Warmly, Jan
 
Aimee,

I am so sorry you went through all of that. I can only imagine what it has done to your life. You are strong beyond belief, a true survivor, and an inspiration to all of us.

<<<<BIG HUGS>>>>
 
Aimee, I am so sorry you are having all of these troubles. I also have PTSD and hallucinations occasionally (hearing voices). So far(as far as seizure type diagnoses) I am only diagnosed with epilepsy. I seem to suspect I may also suffer from psychogenic seizures because my "episodes" seem to contrast greatly from the diagnosed seizures and the ones I keep struggling with currently. I really hope that they can figure things out and get you treatment that's actually helpful. (((hugs)))
 
hi aimee, welcome to the forum. and stay strong. NES is a diagnosis some foks get. other like me get, a "mild seizure disorder". in both cases they have been looking and scanning my head for years -- nothing shows up. its not that uncommon.

bottom line is. you need to take our meds at the times that is says on the label. try to stick to the schedule as close as possible. never stop meds cold turkey.

best of luck.
 
I too am trying to figure out if my new ones are pnes.I did come across something abute acute-repetitive seizures.More than one in a 24 hour period that is distinct from your usual seizures.Distinct means different from what I read.My normal seizures are cp and the ones last week were sp-and nothing alike.My epi raised my dose of trileptal and said it probably was the generic I was given.She told me the new seizures were hidden with the AED.Hope this helps.
 
Hi Mel, glad to meet you. Ask your doctor for a V-EEG. That will tell what kind of seizures you are having, epilepsy, NEAD or both. I have both epilepsy and NEAD.
 
Nothing showed up,I had no spells when I was there.I thought they would try to provoke them but they just left me alone except for when they scolded me for bending over the bed to reach the frig since I didnt want to bother anybody.I posted in another thread that I had been on lamictal and ativan every 6 hrs for prior 3 days.Maybe it wasnt out of my system?
 
If your medicines are controlling your seizures, then epilepsy will not show up on an EEG. Two of the medicines I am on are Lamictal and Lorazepam (ativan.)

That is why you need a V-EEG to see what is going on in your brain. If a V-EEG shows up nothing then you have NEAD.
 
I would say Trileptal controls them about 80% of the time.One sneaks in every other month except last week when I had 1 usual cp and 2 sp right after each other.Does anyone who is pretty well controlled ever feel like they start to have one like tingles or jerks,but it doesnt progress? Its as if the medicine steps in and says "no way" They seem like such a minor annoyance 2 or 3 times a week.I dont want to say anything because Im happy with my treatment.
 
I have jerks from my epilepsy. My neurologist has put me on Mysoline for it and it stops the jerks.
I do have tingles but I believe that is from my Diabetes type 2. Maybe you should be tested for diabetes. Diabetes can cause seizures. The link is:
http://www.isletsofhope.com/diabetes/complications/seizures_1.html

When my diabetes is way out of control, I have a lot of seizures and land in the hospital. I have to be careful to take care of my diabetes to avoid seizures. They tested me for diabetes to rule it out.
 
My father just dx at 71 with type 2 diabetes and had to have immediate surgery for glaucoma in both eyes.The docs say it was from too much Agent Orange.He went to VietNam after I was born so not an issue for me.however,while in utero and first 2 yrs of my life I lived at Camp LeJeune which has a bigtime water contamination problem.Im wondering if the exposure to Benzene led to my neuro problems.Tried to find answers for awhile,but I guess it really doesnt matter where it came from.I have it and have to deal with it.
 
I am sorry to hear about your father. Is he all right? I am 67 years old.

Water contamination can probably bring on seizures. It does not matter, you need to cope with it. It might be a good idea to write down things that you are grateful for. That will help you cope better.

I have a positive attitude during the tough times. It has gotten me through them.
 
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