New E on the block

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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Hi Pinky, welcome to the forum. :hello:
 
Meetz1064 said:
Although, I am looking for MY brain at the moment.........it seems to have wandered away on its own.......:bigmouth:
Click to expand...

Have you checked the refridgerator? :pfft: I think everyone here has a history of storing random things in the fridge.

That's where I found the electric bill. Unfortunately, my brain was nowhere to be found (unless it was the spoiled goop in the vegetable drawer, but I really think at one time that was a head of lettuce) :ponder: :roflmao:

Hey again Pinky! :D and welcome!

TT, honestly, on the toilet? For heaven's sake. Well, at least you always know where your laptop is! :rolleyes:
 
Hi Pinky

Welcome to our family. This is a great forum. Bernard made it for his wife, out of love. It has made so many of us helped as a result. Me, for one.
 
Hi Pinky! Love the way you write, by the way! I'm new here too, recently got off the diagnosis train onto the E. train. Took 5 years and LOTS of misdiagnosis. You have lots of company in here, very similar stories.
Yayhoo for not being "all in your head", it's sort of a relief. When my new neuro walked into the room to tell me the diagnosis, I tearingly told her that if she was going to tell me it was "all in my head" to not even say it. I had already heard it before. Well, she told me it WAS all in my head. Only another E. understands what that means.
Welcome, I'm just getting my feet wet!!!
 
Pinky

Hi Pinky, my name is Kimberly and I've suffered from seizures since I was 3 hours old, frontal lobe seizures, they are very uncontrolled but keep a positive outlook even when things get bad just laugh and chuckle, trust me this helps alot!!!!!!!! And as for Bernard well he's built a wonderful site and helps many of us with questions about seizures and if he doesn't know the answer he'll get u a link he's great. Me and Bernard had a difference of opinions but I understand now. This is one of the best places I've ever been to let out frustration, care, concern or even disgust. Don't be shy type what you feel let it out and don't forget to laugh every day it a life saver. Well if you ever want to talk just email me. Hope you enjoy this site for as much as I do and as much as its helped me. AGAIN THANKS TO YOU ALL, YOU ARE ALL SO WONDERFUL AND PATIENCE. Welcome sweety!!!!! :banana:
Sincerely,
:e::e:Kimberly:e::e:
 
Hi BoudicaWV, I do not believe we have ever met. Hello, it is great to meet you.

Laughter is the best medicine. I have joined the Creative Writing Page under Social Groups. You can really express how you feel.
 
Hi Pinky

I was dx'd at age 29 with EP-simple and complex partials. I dont have any fun stories though....just rely on reading on CWE for that! Welcome again! :clap:
 
I was diagnosed at 6 years of age. At that time I had absence seizures. My tonic clonic seizures did not start until I was 20 years old. I am so glad that I have a husband who understands my epilepsy. Look at the people who understand your epilepsy. Those are the friends and family that you can share fun stories with. That way you forget about your epilepsy. Think positive, a great attitude will get you a long way.

CWE is great. Bernard made it for his wife, out of love. You will find a lot of friends here and it is contagious.
 
Good day to all remember to laugh

Still out of medicine going to doctor today at 9:30 am, hopefully it'll get filled today. Don't know how many more seizures I can take in the past 2 days it been dreadful. On a lighter note I told my husband I feel like the boy in the bubble because if I get up to do anything someone has to be with me because now i'm just falling out then seizing day or night what a complete change in seizure patterns. Scares the hell out of me, my neurologist says my seizures aren't staying in the frontal lobes anymore now there spreading throughout the whole brain. I asked do u want to remove it all, I asked out of cutting a joke, he caught on and then laughed he said sure hold onto this and then; we'll be both ended up laughing at each other, he made a comment well at least u haven't lost your sense of humor. I said never laughter heals the soul and body. He said awww OK. Well off to the doctors again. Talk to everyone later.
Sincerely,
:e::e:Kimberly:e::e:
 
Hi Kimberly, I have the same problem. Either my husband or my son has to be around me. Not always, they are my caregivers. I will go through a streak of seizures and then they stop. Mine are throughout my brain, as well. One time I went through a streak of seizures, I had diabetes type 2. Another time, I had pneumonia. Usually, my streak of seizures are caused by something that has not yet been diagnosed. Ask your regular doctor for tests to see if you have something else. Cause and effect, I call it.
 
Hi Pinky! I read your entire post and I just wanted to say for someone who found out about their epilepsy in such a big way, you seem to have a really positive attitude which is such a good thing. I was diagnosed at 27 and I have to say I was nowhere near as positive as you, I felt like my whole world fell apart. There may be hurdles up ahead but if you stay as positive as you are now you will be fine!
 
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