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Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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misseschris

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Hi My name is Christine: Just happened upon this site, I have a very supporting family and friends but it always helps to find people who truly understand what I mean and what i'm saying (experience is the best teacher). I was officially diagnosed with Epilepsy when I was 6 I mostly have generalized tonic clonic seizures since the age of 2 or 3. Gained a great deal of control pretty soon after diagnosis until puberty hit so from the age of 12 until about 17 it was a roller coaster of new drugs, multiple drugs, breakthrough seizures, crazy side effects etc. My parents didn't feel comfortable with me driving so that was out of the question (we lived in IL where there are not any specified laws) got my license when I was 21 though (yey!!).....completed undergrad (using a low dose of Dilantin 2X a day) with an occasional seizure maybe once or twice a year. Shortly after completing undergrad had a couple of life altering events occur and my hormones were sent raging and on the path that we're on today-I've tried various medication from phenytoin to tegrtol and even Keppra (which is mostly for partial seizures but i've gotten the best results). I'm having seizures approximately once a week and for some reason (as of the last 6 months) the seizures are lasting longer. Currently in a state of transition looking to move out of state looking for new Doctors and a new job and breaking up with my boyfriend. Im trying to maintain a positive outlook on life (its worth living and thriving). I've received some really good advice from people on this site.

So hello everyone in the foyer and thank you Bernard and Stacy for pulling something like this together!
 
Hi Christine - I just wanted to welcome you to the group and congratulate you for your willingness to continue moving on with such a positive outlook. I'm certain that you will find a lot of friendly people in the group, with each of us here because we have something in common. I wish you the best.
Sincerely, Josie :)
 
Hi Christine - Welcome to CWE
I hope we can help you with your positive move forward.
 
Welcome

If you're used to supportive then you came to the right place. Tons of information here too. Here, have a coffee:cheers: & check the place out.
 
Hi christine! Welcome to CWE. Feel free to look around, check out the library here at the site, ask questions, chime in, or just vent in the padded room when necessary. :)
 
Hey Christine

welcome to the site i am newish here as well but what i have found is that the people that i have spoke to have all very friendly and very helpful hope you enjoy it here and meet alot of helpful people

Peter :)
 
Hi Christine, welcome to the forum. :hello:

If the drugs aren't working, perhaps some alternatives will. Have you looked into diets, neurobehavioral therapy techniques, neurofeedback, etc.?
 
Hello Christine!.....

:hello: You can find a lot of good info here...and NOWHERE will you find better folks!

I can say music has helped me the most....not a cure, but a deterent and severity-lessener for sure!

De-stress and enjoy life as much as possible....good luck!

Peace,
Speber
:rock:
 
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