New Here Also ... Not sure what I'm doing

Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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xoloveliz

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The official Epilepsy page on Facebook recommended that I go on here to connect with others with similar challanges I face. I've never been on this site, let alone a forum, so if there is a thread similar to this and I just created a new one, I apologies. I absolutely have no idea how to edit or create or work anything here. One may say I need assistance, but I thought I'd introduce myself first. So, uh. Yeah. Hi there. Name's Liz, 19, from NY, with Temporal Lobe epilepsy.
 
Hello Liz! welcome to coping with epilepsy! Im a 31 year old female with left temporal lobe epilepsy. I was dx'd as an infant and have been taking anti seizure medications since the age of 1. There are alot of great people here! If you have any questions, please feel free to ask!

One way you can reply to posts, is by clicking the reply button at the bottom right hand corner of each post. :)
 
Hi Liz,
Welcome to CWE. You have come to a great place where we all share our experiences with epilepsy (not just people with epilepsy but some members have loved ones with epilepsy). If you have any questions feel free to ask & someone will do their best to help you.

xoloveliz said:
I've never been on this site, let alone a forum, so if there is a thread similar to this and I just created a new one, I apologies. I absolutely have no idea how to edit or create or work anything here. One may say I need assistance, but I thought I'd introduce myself first. So, uh. Yeah. Hi there. Name's Liz, 19, from NY, with Temporal Lobe epilepsy.
Click to expand...
You have put your thread it in the right spot as 'the foyer' is for new members to introduce themselves.

I have left temporal lobe epilepsy & have had a history seizures for 34 years. I was 1st diagnosed at 9 months & took tonic clonics until I was 3. I went 21 years seizure free until my seizures returned in 2002 when I was 24. After I started taking seizures again I took mainly partial seizures. I am currently almost 2 years seizure free :).
 
Hi Liz and welcome! Not to worry, as you can see a lot of us have trouble with spelling and grammar especially following a seizure. There isn't anything that someone here isn't willing to help you with. Hope to see you often!
 
Welcome Liz! One of the first rules of joining an internet forum for the very first time is that you have to give the first member who asks whatever they ask for. Simple, right? So what I would like is a new four wheel drive pickup, either red or blue, with a canopy to protect the recycling bins and the dog and an extended cab so my grandkids will fit.

You do believe me, don't you?

On a slightly more serious note, I was diagnosed with epilepsy when I was 23, but had had small partial seizures for much of my life, though they happened mostly at night and were not really recognized for what they were. The first really big one hit in 1982 so that was when I started on the meds. Epilepsy can be a challenge, but with good meds and a good neurologist and a good support system there's no reason that most people can't have a great life. You have found a good support group here, but sometimes the meds and the neuro can take a little hunting and trial and error.

How long have you had epilepsy?

Again, welcome to the forum!

(I'll go stand in the driveway now and wait for my truck to be delivered.) :)
 
hi liz....i pretty crap to on forums and finding meself aswel...just keep trying that way to learn
 
Hi,

I hope you find this forum to be supportive, a means for great and helpful information.

I have had E. all my life, wasn't diag. until I was 18, I'm now 60. I been to many dr. taken many meds.
 
Thank you everyone! I think I got the hang of this now. I didn't realize how many people have Epilepsy. I don't feel so alone anymore. :D
 
Hey Liz, welcome to CWE. :)

I'd love one of those brand new corvettes, haha.
 
feliz dia mi xoloita
I'm 42 and was diagnosed in 2008 after some tonic-clonic seizures
since then I've been using this site for help, for support, for information, for playing games, and to just have some awareness that I'm not the only one going through this type of crap.
I found out recently I have sleep seizures too. Sometimes having a grasp of reality is hard because there is such confusion and lack of substance to some days. It's also hard to know when seizures are occurring sometimes.
Anyway, hang in there. This is a great site for help and support and community. Better than any other I've found.
Peace.

images
 
hi

I also have partial comlox temperal lobe epilepsy , but it also takes place in my left occipital lobe . one crazy brain I have . Do you have any trouble finding boyfriends because of your seizures? jenn
 
jenn2482 said:
how do I start a new thread
Click to expand...

1st. on the E forum, select one of the forums (example Kitchen)
you will see NEW TOPIC located at the left of the screen.

Hit that and ask away.

Hope my explanation is of help.
 
Hi Liz...you will love it here with all these awesome E friends. I have TLE too but getting use to having strange brain episodes now and then...diagnosed 2010 I think...lol memory sucks! I have had grand mals in the past too but none of those lately which is awesome...because they really knock me out.
 
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Thanks so much !!! I have more support from this site than I had anywhere else. Means alot.
 
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